In September, I was told it was “improbable but not impossible” to see SB983 progress because of our many delays (and a global pandemic). I took that as a challenge. … Continue reading Signed by Governor Wolf
Category: Child Loss
SB983 – PASSED UNANIMOUSLY!
Even just two weeks ago I was seriously questioning the outcome of SB983. I felt so uncertain after it seemingly became a partisan issue in the Human Services committee, and … Continue reading SB983 – PASSED UNANIMOUSLY!
SB983 – Out of House Human Services Committee
I was not adequately prepared for the level of stress and frustration that accompanied today’s proceedings. We knew that the Department of Health had been “shopping around” their amendments and … Continue reading SB983 – Out of House Human Services Committee
Strength & Scars
Today Caleb broke the handle off of my favorite coffee mug. This mug was given to me while Tori was sick and I love that it has both giraffes and … Continue reading Strength & Scars
Sometimes Grief Looks Like Clothing
I knew that we would have many practical tasks to handle once we found out that our embryo transfer had failed. A failed transfer meant that our family was complete … Continue reading Sometimes Grief Looks Like Clothing
Lament and Joy
A friend recently asked me a two-part question that I have been pondering for days now. She asked: “How has your story of walking through lament – and joy in … Continue reading Lament and Joy
Expectations and Reality
I wrote these words exactly one month ago and I’ve been pondering them, again, over the past three days as we adjust to our new reality: I’ve been struggling lately … Continue reading Expectations and Reality
Explaining the Current Newborn Screening System in Pennsylvania
Below is the text of a document I created and have been distributing to legislators to explain (as simply as possible) the way that Newborn Screening works in Pennsylvania currently … Continue reading Explaining the Current Newborn Screening System in Pennsylvania
Unexpected Loss – Kailee Seal
Ever since Tori went to Heaven I have held the belief that, if you are going to lose a child, we had it the “better” way because we had time … Continue reading Unexpected Loss – Kailee Seal
Nineteen Months & Twenty-Eight Days
Sometimes I just don’t know what to say. I’ve had nearly twenty months to prepare and yet I’m still not sure what to write. I’ve felt some self-imposed pressure to … Continue reading Nineteen Months & Twenty-Eight Days
