Below is the text of a document I created and have been distributing to legislators to explain (as simply as possible) the way that Newborn Screening works in Pennsylvania currently … Continue reading Explaining the Current Newborn Screening System in Pennsylvania
Ever since Tori went to Heaven I have held the belief that, if you are going to lose a child, we had it the “better” way because we had time … Continue reading Unexpected Loss – Kailee Seal
Sometimes I just don’t know what to say. I’ve had nearly twenty months to prepare and yet I’m still not sure what to write. I’ve felt some self-imposed pressure to … Continue reading Nineteen Months & Twenty-Eight Days
I began the day feeling somewhat defeated, feeling as though there is nothing more I can do to help HB730 get to the floor. I had a phone call with … Continue reading From Feelings of Defeat to Knowledge and Hope
As we wrote last week (see post here), we’ve been collecting giraffes since this summer in celebration of Tori turning five in Heaven. As of tonight we had 566 giraffes … Continue reading Hershey Bears’ Teddy Bear Toss Game 2019
This is the transcript from a devotional I led today at MOTS at LCBC. Lately I’ve been studying the importance of remembering as I prepare to write again. I’m not … Continue reading Gratitude Requires Effort
Today was one of those days where everything made sense, once again. It was a day filled with non-coincidences (meaning that God was clearly at work because there’s just no … Continue reading It All Works Together for Good
