Today I attended the quarterly meeting of the Newborn Screening Advisory Panel of Pennsylvania as I did in April and will continue to do until Krabbe is on the mandatory … Continue reading NBS Advisory Board Meeting, August 23, 2016
As we walked through the Hershey Gardens today after locating the tree placed there in Tori’s memory, I noticed all of the bricks and sculptures that had been placed in … Continue reading Will They Wonder?
I try not to think about what might have been, cause that was then… We can’t go back again, there’s no use giving in, and there’s no way to know … Continue reading What Might Have Been
Today, Hospice of Central Pennsylvania held a butterfly release to honor our loved ones who have passed away. Though Brennan had to work, I went to represent our family and … Continue reading Hospice Butterfly Release
I love when God speaks to you so clearly through circumstances. If you come across a passage of Scripture once in a day you might read it and then move … Continue reading Even Though…
Before Tori was born, many people told us to cherish the early years because they would go quickly, never to return. After she was diagnosed with Krabbe the moments moved … Continue reading Fleeting Moments