It’s been a very long ten days. Ten days ago we weren’t sure if SB983 (our Newborn Screening Legislation) was going to have a fighting chance this session. Ten days … Continue reading SB983 – Moving to the Floor
Category: Make a Difference
Building and Rebuilding
My children love to build with blocks and Legos. They have become quite good at stacking them higher and higher and are always so proud of their creations. However, when … Continue reading Building and Rebuilding
Book Review: One Woman Can Change The World by Ronne Rock
Often when you read books like these you are left feeling inadequate, pressured to achieve a new level of faithfulness or achievement. However, I found One Woman Can Change The … Continue reading Book Review: One Woman Can Change The World by Ronne Rock
Differences Make Us Better
If you had told me twenty years ago that one of my favorite people now would be a Liberal (gasp!), I would have laughed. I would have told you that … Continue reading Differences Make Us Better
Quarantine Day 17 of 58
I keep trying to figure out how all of this makes me feel so that I can remember it in future years. Most of us have never experienced anything like … Continue reading Quarantine Day 17 of 58
There’s Always Good (and God) to Be Found
“Through all of this chaos You are writing a symphony.” – Switch We’re living in a strange time right now. As of midnight, all non-essential businesses in Pennsylvania – including … Continue reading There’s Always Good (and God) to Be Found
Press Release for SB 983
Senator DiSanto’s office issued a press release today about SB 983 – our Senate companion bill to HB 730. We are thankful that he was willing to help us improve … Continue reading Press Release for SB 983
Explaining the Current Newborn Screening System in Pennsylvania
Below is the text of a document I created and have been distributing to legislators to explain (as simply as possible) the way that Newborn Screening works in Pennsylvania currently … Continue reading Explaining the Current Newborn Screening System in Pennsylvania
From Feelings of Defeat to Knowledge and Hope
I began the day feeling somewhat defeated, feeling as though there is nothing more I can do to help HB730 get to the floor. I had a phone call with … Continue reading From Feelings of Defeat to Knowledge and Hope
Book Review: Something Needs to Change by David Platt
It’s rare for me to be torn between savoring a book or reading it all at once, but this book made me feel that tension the entire time. Something Needs … Continue reading Book Review: Something Needs to Change by David Platt
