I began the day feeling somewhat defeated, feeling as though there is nothing more I can do to help HB730 get to the floor. I had a phone call with … Continue reading From Feelings of Defeat to Knowledge and Hope
It’s rare for me to be torn between savoring a book or reading it all at once, but this book made me feel that tension the entire time. Something Needs … Continue reading Book Review: Something Needs to Change by David Platt
Last week’s sermon hasn’t left my mind much since I heard it. The focus was on 2 Corinthians 5:14-16, 19-20. “Either way, Christ’s love controls us. Since we believe that … Continue reading The What or The Who (Not the Band)
As you may have gathered, Brennan and I would like to expand our family and have more children. Our hearts long for this, and we’ve been working hard to make … Continue reading Our IVF/Adoption Journey
As we walked through the Hershey Gardens today after locating the tree placed there in Tori’s memory, I noticed all of the bricks and sculptures that had been placed in … Continue reading Will They Wonder?
Today I (Lesa) had a meeting with the staff from Representative Angel Cruz’s office regarding the legislation they are preparing to introduce to reform the way Newborn Screening is done … Continue reading Call to Action in Pennsylvania
Today was an exciting day for Tori (and us). Today those with Rare Diseases in Pennsylvania were recognized and their advocacy efforts were applauded publicly at the Capitol. Tori and … Continue reading Rare Disease Day at the Capitol