The ACHDNC decided to not recommend that Krabbe Disease be added to the federal RUSP on Thursday and I’m angry.
Category: Take Action
There are Education Problems to Solve in Pennsylvania
One of the most incredible things that came from stepping out of partisanship has been the ability to look at issues with a fresh perspective, without party rhetoric ringing in … Continue reading There are Education Problems to Solve in Pennsylvania
Partisanship Through the Lens of Morality
What I have come to see so clearly over the past few years is that this demonization of the other side is unfounded. It has to stop because it’s based on falsehoods and it is ruining us. It is breaking families apart – and the family is the very thing the American Evangelical Church proclaims is their priority. The politics being preached from the Far Right are undoing the very mission of the Church at a record pace.
Naming the Struggle
I’ve been struggling for months. Even worse, it has taken me until very recently to put a name to the struggle. About two weeks ago I figured it out and … Continue reading Naming the Struggle
Signed by Governor Wolf
In September, I was told it was “improbable but not impossible” to see SB983 progress because of our many delays (and a global pandemic). I took that as a challenge. … Continue reading Signed by Governor Wolf
Discomfort Should Be Our Goal
And, if we move forward wisely, if we choose to learn and grow rather than continue to fight and divide, this could very well be the best thing to happen in our lifetime. This pandemic-filled, tension-ridden, politically crazy year very well may lead to a more beautiful, loving country than we have seen before.
SB983 – Out of House Human Services Committee
I was not adequately prepared for the level of stress and frustration that accompanied today’s proceedings. We knew that the Department of Health had been “shopping around” their amendments and … Continue reading SB983 – Out of House Human Services Committee
SB983 – Unanimous Senate Passage, Now to The House
I’m exhausted. Tuesday was a day of great celebration as SB983 passed the Pennsylvania Senate unanimously. Even getting to the floor was a serious accomplishment and I’m so grateful for … Continue reading SB983 – Unanimous Senate Passage, Now to The House
SB983 – Moving to the Floor
It’s been a very long ten days. Ten days ago we weren’t sure if SB983 (our Newborn Screening Legislation) was going to have a fighting chance this session. Ten days … Continue reading SB983 – Moving to the Floor
Reflections on my No Facebook Experiment
Yesterday I downloaded the Facebook app after a week of not using it at all. And I’m a little surprised at what I learned. I really didn’t miss it. I … Continue reading Reflections on my No Facebook Experiment
Even So, Joy 