We bought Tori a first birthday present! (Brennan is holding her feeding equipment,because we forgot the pole). With the ever-increasing amount of equipment she requires, it became quickly evident that … Continue reading Tori’s First Birthday Present
The Zippie Voyage was delivered today! Many families wait MONTHS to get their equipment, which is just wrong. We are so blessed that it took only three weeks! This … Continue reading Tori’s Adaptive Stroller
As we talked with other families at the Hunter’s Hope Symposium we discovered that many of them had “bucket lists” of things they wanted to experience with their children while … Continue reading Tori’s Bucket List
Today was a “free day” for families to do as they pleased. Most spent time at the pool and relaxed around the resort. Brennan played golf with three of the … Continue reading Hunter’s Hope Symposium: Day Four
What a busy and fantastic day! Tori got to spend time with some of her buddies…this is Parker from Maryland. He is eight months old. We heard from several … Continue reading Hunter’s Hope Symposium: Day Two
We made it! Our day started early as we had to go pick up our rental vehicle. We decided early on that renting a bigger vehicle was essential if we … Continue reading Hunter’s Hope Symposium: Day One
What a week it has been. We returned home from California early on Thursday morning, did laundry, repacked, and worked at Milton Hershey School Saturday and Sunday. We have had … Continue reading #ToriTuesday Update!
It’s been busy since we got back from Pittsburgh last Thursday! We unpacked and immediately repacked for a weekend of houseparenting at MHS (Milton Hershey School). Tori turned ten months … Continue reading #ToriTuesday Update
What a day! We took the train to Pittsburgh this afternoon for Tori’s three month follow-up appointment with Dr. Escolar tomorrow. The train ride went smoothly except for one thing: … Continue reading Pittsburgh, Round Two #ToriTuesday
Now that we are nearly three months post-diagnosis, we are attempting to resume a “normal life” – living just like we would if she were healthy. We want to still … Continue reading Maintaining Normalcy…
