We try to educate others about our everyday life as much as possible, especially when it comes to unique medical things that we ourselves knew nothing about six months ago. … Continue reading Life with a Feeding Tube
Today was a good day. I was finally well-rested (slept for 10 hours!!) because Brennan “made” me go home to sleep (like I would have said no). So thankful. I … Continue reading Headed home!
Tori’s surgery went well and it took an hour LESS than expected! They were able to do everything laparoscopically so she won’t have any scars. She is now sleeping in … Continue reading In Recovery…
We were told yesterday that Tori’s g-tube/Nissen surgery will be at 8am on Monday in Hershey. We will arrive at 6am. Poor Tori has been throwing up most of her … Continue reading Update on Feedings and Surgery
Tori’s g-tube surgery will be on March 23rd in Hershey. She will be in the hospital at least two days, likely more.
We also have decided to go ahead with the Nissen procedure at the same time. We read about it, heard from a couple of Krabbe moms who regretted not doing it at the same time, and watched how many times Tori spit up or threw up this weekend, and we feel that it is the best move to make. We don’t want to have to do this, but it will make her more comfortable.
This also means that we likely won’t come to California until April now.
Only three more weeks of the NG tube 😄