Tori was discharged from the hospital around 1:30pm on Sunday! Her sodium has remained steady since they stopped one of her meds. We will continue to add a sodium mixture … Continue reading Home!
Tori was admitted to the hospital almost exactly ten months ago for a feeding tube pre-diagnosis. That hospital experience was incredibly stressful because we felt like we were in … Continue reading Ten Months Later
We finally got into a room around midnight and by then I was even more exhausted than I usually am. Of course, even though I had already gone over our … Continue reading Sodium and Other Updates
One thing we’ve learned about our Tori is that she goes all in. Rarely is anything subtle or gradual. We brought Tori to the ER tonight because her breathing changed … Continue reading Back in the Hospital