Tag: Rare Disease

Krabbe Awareness Month: Day Thirty

Krabbe Awareness - 30

We hope you’ve learned something new this month, but we also hope that you’ve been moved to take action.

What can you do?

  • Write/call your legislators. It only takes a few minutes, and it can make a huge difference.
  • Donate to organizations like Hunter’s Hope so that they can continue funding the Leukodystrophy Care Network and supporting affected families.
  • Read (and tell others about) my book, Even So, Joy: Our Journey Through Heartbreak, Hope, and Triumph. We want Tori’s story to continue to touch lives and it means so much when we hear about others reading it.