Tori’s Stander

Today was Tori’s final stander fitting and now we are set to use it!

You can read about the stander and its purpose here.

We waited less than three months to get it and would have had it sooner but it was sent to a medical equipment company in Philadelphia and had to be tracked down. 

Three months may sound like a long time but many families wait MUCH longer!

Tori slept through most of the fitting so we know she was comfortable! Her physical therapist and our favorite representative from the equipment company worked diligently to ensure that Tori was comfortable and properly supported into the correct posture.

We will start with having her stand less than an hour a day and build up to more time.

Plenty of new experiences await Miss Tori in her new stander! ❀️

  
    
    
    
    
    
    
   

Stander Fitting!

There are many pieces of equipment that help our Krabbe babies, and a “stander” is one of those things.

  

Tori will be getting the EasyStand Zing MPS.

The stander provides the following benefits:

  • Improves/maintains range of motion
  • Decreases joint/muscle contracture 
  • Management of atrophy in the trunk and lower extremities 
  • Improves strength to trunk and lower extremities 
  • Decreases muscle spasms
  • Improves/maintains bone integrity/skeletal development 
  • Lessens/manages the progression of scoliosis 
  • Manages pressure (ulcers) through changing positions 
  • Improves bowel function and regularity 
  • Aids in kidney and bladder functions 
  • Strengthens cardiovascular system and build endurance 
  • Improves circulation 
  • Reduces swelling in lower extremities 

By the age of 1, most babies are moving around and learning to stand on their own…Tori can’t do that herself, so this will help her body receive the benefits of standing.

Tori had her fitting today and we are excited! This is a new model and it has many helpful features that will make her more comfortable.

To start, you lay the child down and properly strap them in.   
  
Then, you slowly raise them up to a standing position.

  
    

At this point Tori was voicing her displeasure at this new position πŸ˜‰ Don’t worry – she wasn’t in pain, it was just new.

    
    

Maybe this isn’t so bad… πŸ˜‰
    
   

As you can clearly see by her facial expressions, she wasn’t so sure about it at first, but she adjusted to the new position and seemed to enjoy standing up.

We should have her stander in about a month or less!