Today we heard updates from several hospitals that are working toward becoming Leukodystrophy Centers of Excellence in order to better care for these children and their complex needs, and we … Continue reading Hunter’s Hope Symposium 2017 – Day Two
Tag: Symposium
Hunter’s Hope Symposium 2017 – Day One
Symposium time is here! It's the one time each year we are surrounded by people from all over the world who understand exactly what we have been through. It's the … Continue reading Hunter’s Hope Symposium 2017 – Day One
Hunter’s Hope Symposium: Thursday
Today we heard reports on the Leukodystrophy Care Network that Hunter’s Hope is working hard to implement around the country. They are the voice of the family in ensuring excellent … Continue reading Hunter’s Hope Symposium: Thursday
Even So, Joy 