Today is a big day for the Krabbe community! The committee (HRSA) that decides which conditions are added to the federal Recommended Uniform Screening Panel (RUSP) voted UNANIMOUSLY today to … Continue reading Krabbe Moved Forward to Full Evidence Review
If you had asked me three days ago if I would ever go to grad school, I would have said no. I’ve thought about it off and on since I … Continue reading A New Chapter Begins
When Tori passed away, Brennan and I made a commitment to always making March 27th a special, joy-filled day. After all, she’s having fun, so why shouldn’t we? We usually … Continue reading Six Years – Celebrating Tori
Six years ago today (at 9:05am) we said farewell to our beautiful daughter. That day, we went through the motions of implementing the decisions made months before – unwanted tasks … Continue reading Six Years – The Impact
As the sixth anniversary of Tori’s death quickly approaches (Sunday), and with the passing of my friend’s daughter Calliope yesterday, I have been reflecting a great deal on the beauty … Continue reading Triumph and Purpose After Tragedy
I want to be upfront that what I’m about to say does not reflect our current church home – we are very grateful for the fact that they never bring … Continue reading An Unwanted Journey: Part Two
I wrote this Tweet a little over a month ago as a quick expression of a much deeper conversation happening within my mind. The longer I have been removed from … Continue reading You Are Probably Being Manipulated
When I feel offended by something or learn new information that goes against what I currently believe, I’ve learned to embrace this perfect opportunity to sit in that feeling for … Continue reading What I ask when I feel offended…
I have found myself so much more at peace since discovering this truth: The other party isn’t my enemy, isn’t out to destroy our country, and isn’t evil. It’s so … Continue reading Maybe there’s little to fear…
“I know more about Krabbe than I’ll ever know about Collin.” Kevin Cushman My friend, Kevin, made this statement at a recent Krabbe panel in which we both participated and … Continue reading There are Stories to Tell and Lives to Save
Even So, Joy 