Who Are We?

Our Journey & Mission

Welcome to our story. We are Brennan and Lesa Brackbill, and our lives are defined by a commitment to family and a passion for Newborn Screening advocacy.

Our daughter Tori’s life was short, but her impact is eternal. Born in 2014, her diagnosis of Krabbe disease revealed a critical gap in Pennsylvania’s newborn screening system. This realization launched a career in advocacy that resulted in the unanimous passage of Act 133 of 2020.

Because of Tori’s legacy, babies in Pennsylvania are now screened for Krabbe disease at birth, giving them a chance at life Tori never had.

Tori passed away on March 27, 2016, but her story continues to change lives. You can follow our journey through Lesa’s writing on the blog and her two books:

• Even So, Joy: A memoir of Tori’s life and the hope found in heartbreak.
• A Brighter Blueprint: A guide to effective advocacy born from a decade of experience.

Today, we reside in Hershey, PA, with our identical twin sons, Isaiah and Caleb. They represent a new chapter for our family—one rooted in the joy we continue to choose every day.