We (Brennan and Lesa) met in April 2009 and never would have guessed from that meeting that we’d be married today! But, God knew all along and that’s partly why He brought Lesa to Pennsylvania from California.
We were overjoyed to welcome Tori (Victoria) into our lives in July 2014.
Our lives were forever changed by that event, but they were further changed when she began exhibiting symptoms of Krabbe in January 2015. There is no cure for Krabbe, only treatment if caught at birth. Unfortunately, Pennsylvania didn’t screen for Krabbe when Tori was born. This realization launched Lesa into a career of advocacy for Newborn Screening for Krabbe; three bills and six years later, Act 133 of 2020 was signed into law in Pennsylvania, strengthening the Newborn Screening program and allowing the implementation of NBS for Krabbe, which began in May 2021.
Our precious Tori went to Heaven on March 27, 2016 and is now free from Krabbe. Even so, we choose joy, and we trust God with the details. You can read Tori’s story in Lesa’s book, Even So, Joy.
We will not stop our fight until every child in the U.S. is screened for Krabbe at birth. Victoria means “victorious” and we WILL be victorious in this fight to save lives.
In April 2018, they welcomed identical twins – Isaiah and Caleb – into their family. The twins are Krabbe-free ❤
Current residence: Hershey, Pennsylvania