I use my gifts and experience to encourage collaboration, educate, empower, and inspire action! My focus is advancing Newborn Screening, with the goal of giving every baby born with a leukodystrophy an equal chance at a healthy life – a chance my daughter Victoria didn’t receive.
The depth of my love for my daughter is not
Lesa Brackbill
measured by the number of tears I have cried,
but rather by the life I choose to live in her absence.
“I may not know if Tori really liked giraffes or not, but I do know this: I know the pain of Krabbe, I know the pain of not having a chance to try to save my child. I don’t want others to walk the path we did. I want them to have an option, to have hope. I want my lack of knowledge about my daughter to be the door to a lifetime of memories for them.”
Lesa Brackbill (from this post)
Special thanks to Perigee Photo Co. for so perfectly capturing
what it is like to attempt to accomplish things while Brennan is at work.
These depict real-life moments with the boys who always
want to be right where their mama is and love to join every Zoom meeting.
Even So, Joy 