In early March I was interviewed by InvestigateTV after speaking with reporter Joce Sherman on the phone a few months earlier. She came to our home, where I thankfully was … Continue reading InvestigateTV Episode about Krabbe Disease Newborn Screening and NBS Funding Issues
Tag: Motherhood
Comparison in Motherhood
I saw a post on Facebook today that made me feel many things all at once. It was a post by a mom in a large Facebook group known for … Continue reading Comparison in Motherhood
New Playroom and Redemptive Joy
It’s been almost six years since I wrote this post about the playroom we created for Tori in the midst of medical appointments and uncertainty. It was a project of … Continue reading New Playroom and Redemptive Joy
Building and Rebuilding
My children love to build with blocks and Legos. They have become quite good at stacking them higher and higher and are always so proud of their creations. However, when … Continue reading Building and Rebuilding
Strength & Scars
Today Caleb broke the handle off of my favorite coffee mug. This mug was given to me while Tori was sick and I love that it has both giraffes and … Continue reading Strength & Scars
Day One after Ninety-Eight
Today was the first time in ninety-eight days that I was by myself with the boys all day long. Brennan returned to work on Friday but my parents were still … Continue reading Day One after Ninety-Eight
Time to Be Still
I have to admit that I’m not upset about events and gatherings being cancelled over the course of the next month. News of each cancellation has brought some unexpected relief … Continue reading Time to Be Still
Isaiah & Caleb’s Adventure List: Christmas Tree
One of my favorite traditions as a child was cutting down our own Christmas tree. I have such great memories of getting our permit for a tree in the mountains … Continue reading Isaiah & Caleb’s Adventure List: Christmas Tree
More Than Just a Stove
On December 25, 1989 I was given a handmade stove from my great-grandparents. I would be turning seven the following week and loved to pretend to cook, so my wonderful … Continue reading More Than Just a Stove
Isaiah and Caleb’s Adventure List: Build-A-Bear
When we started to create a “bucket list” for Tori, we knew time was short. We knew we had to cram as much into her limited days on earth as … Continue reading Isaiah and Caleb’s Adventure List: Build-A-Bear