Welcome!

Meet the Brackbills

Whether you are here to learn about rare disease resources or find inspiration in a story of resilience, we are glad you’ve joined us. We’re the Brackbill Family, and while Lesa is usually the one writing, this is our collective story.

Lesa is an author and advocate whose work is rooted in a deep commitment to faith, family, and legislative reform. From her successful advocacy for Act 133 of 2020 in Pennsylvania to her role as Director of Advocacy for Patient Advocacy Strategies, Lesa is dedicated to changing the future. And her family is right beside her, always.

As the author of Even So, Joy and A Brighter Blueprint, Lesa shares the twelve threads of effective advocacy with a global audience.

Recent Ponderings

A Brighter Blueprint Promo Video