Meet the Brackbills
Whether you are here to learn about rare disease resources or find inspiration in a story of resilience, we are glad you’ve joined us. We’re the Brackbill Family, and while Lesa is usually the one writing, this is our collective story.

Lesa is an author and advocate whose work is rooted in a deep commitment to faith, family, and legislative reform. From her successful advocacy for Act 133 of 2020 in Pennsylvania to her role as Director of Advocacy for Patient Advocacy Strategies, Lesa is dedicated to changing the future. And her family is right beside her, always.
As the author of Even So, Joy and A Brighter Blueprint, Lesa shares the twelve threads of effective advocacy with a global audience.
Recent Ponderings
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The Roads We Travel
In A Brighter Blueprint, I reference this famous poem by Robert Frost: Two roads diverged in a yellow wood,And sorry I could not travel…
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Ten Years Since I Last Held You
A Note for Tori I cannot believe it’s been ten years since I last held you. I hope you know how much we love…
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Free Gift for Preorders!
My new book, A Brighter Blueprint: The Twelve Threads of Effective Advocacy, launches in just three days! Every preorder will receive not only a…
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Five Ways to Support the Launch of “A Brighter Blueprint”!
With “A Brighter Blueprint: The Twelve Threads of Effective Advocacy” officially launching on March 27, many of you have asked how you can help…
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Twenty-One Days to Go
In just three weeks, A Brighter Blueprint: The Twelve Threads of Effective Advocacy will be here! My team helped me create this short promo…
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The Tenth Year: From a Monument to a Map
Ten years. In thirty-one days, on March 27th, we will mark a decade since we said goodbye to Tori. For 3,652 days, I have…
