Last November, Forge Biologics (the company with a gene therapy for Krabbe Disease in clinical trials) came to our home to film our story, and it was released today.
It is so beautifully done and I wanted to share it with all of you.
If you are on Facebook, please visit this link and share it with all of your friends and family to help us increase awareness of Leukodystrophy, Krabbe Disease, and Newborn Screening.
We are so honored that they chose to feature Tori ❤
Even So, Joy 
So powerful. My thoughts and prayers are that your efforts will lead to screening throughout the United States and the world. Thank you for sharing this.
LikeLiked by 1 person
I cannot thank you enough for sharing your story. Helping families feel less lonely and have more opportunities. Thank you for sharing Tori with us.
LikeLiked by 1 person