This weekend, our family traveled to Columbus, Ohio in order to visit and present to Forge Biologics – the incredible company with a promising gene therapy for Krabbe Disease in … Continue reading Our Visit to Forge Biologics

This weekend, our family traveled to Columbus, Ohio in order to visit and present to Forge Biologics – the incredible company with a promising gene therapy for Krabbe Disease in … Continue reading Our Visit to Forge Biologics
I’ve been struggling for months. Even worse, it has taken me until very recently to put a name to the struggle. About two weeks ago I figured it out and … Continue reading Naming the Struggle
I knew that this trip to California would be the most challenging yet with our 20-month old twin toddlers, so I scoured the Internet for ideas of how to entertain … Continue reading Travel With Toddlers
It’s amazing how you can take your hometown for granted, how you can completely miss the beauty of where you live simply because you see it all the time. When … Continue reading Exploring Red Bluff
In early January we purchased our plane tickets for ten days in California with my family and we were SO looking forward to being out there. We had planned to … Continue reading The Road Trip that Almost Was…
Any children of ours will grow up to be Philadelphia fans if Brennan has anything to say about it. Brennan loves the Phillies, Eagles, and, of course, the Flyers. This … Continue reading Tori’s Bucket List: Go To a Philadelphia Flyers Game
As you know by now, the giraffe has become Tori’s mascot, so to speak. We have been told that whenever people see giraffes they think of – and pray for … Continue reading Tori’s Bucket List: Feed Giraffes (Philadelphia Edition)
While we were planning our Arizona experience we found out that my dad’s grandmother was going to be in Mesa (she’s a “snowbird” 😉 ) and we were so excited! … Continue reading Tori’s Bucket List: Meet My Great-Great Grandmother
If you go to Arizona, going down to Tucson to see the gigantic cacti is well worth the drive. This was a first for our little family – we had seen … Continue reading Tori’s Bucket List: See a Giant Cactus
We had been planning for over a year to visit the Grand Canyon during our trip to Arizona, so this became an easy addition to Tori’s Bucket List. What made it even more special was that it was Brennan’s first time to see it as well.
If you’ve never been there, it’s truly a must. You can stand there looking for hours on end without becoming bored. Amazing that so many people come to see this gigantic hole in the ground!
This was the first stop for our Arizona experience. We drove from Southern California that morning and made it just in time for sunset!
We spent the night there and went back to the Canyon Rim the next morning, and we got some great family photos.
I am so thankful that we got to experience this with Tori. We don’t know how well she can see, but that won’t stop us from showing her whatever we can while she is with us. ❤
Thanks to the Miks family for making this possible! ❤️