The Road Trip that Almost Was…

In early January we purchased our plane tickets for ten days in California with my family and we were SO looking forward to being out there. We had planned to do so many fun things with Tori and added things to her bucket list.

Earlier this week, I found out from United that we needed to have a form signed by her doctor as proof that she requires continuous oxygen. So, I sent it over to Dr. Escolar’s office on Monday.

Yesterday, I still hadn’t received the form back so I contacted them. I was told that Dr. Escolar wanted to talk to me because she was very concerned about Tori flying.

Three and a half hours before we were supposed to leave for the airport I was told that it is extremely dangerous for her to fly. 

I was very surprised to hear her say this because we told them last month we would be taking her to California. Nothing was said about the dangers of flying.

She has hydrocephalus (too much fluid in the skull) and apparently the pressure from flying could have killed her. 

I told Brennan what had transpired and mentioned the idea of driving to California. It would “only” be 40 hours, afterall. He agreed and we were both excited to be spontaneous – we like to plan things thoroughly. We both enjoy traveling and adventure, and road trips are awesome.

Thankfully we had purchased the travel insurance – first time ever – so we knew we would get our money back in full.

What a perfect bucket list addition a cross-country road trip would be!

So, we hopped in the van and left Harrisburg at 5:45pm. We stopped near Cleveland to sleep – which proved to be impossible for me since I had so much caffeine running through my veins.

I laid there awake for hours and finally decided to get on Facebook to pass the time.

One of my elementary school teachers had commented  on our post about driving there that I-80 (our intended route) gets pretty high in elevation over the Rockies. I looked it up and saw that it reaches 8,900 feet – almost as high as the initial ascent when flying!

Around 5:30am I woke Brennan up and asked what he thought we should do, given the fact that I didn’t sleep more than two hours (and we were both too exhausted to drive 12-16 hours today), and the fact that Tori shouldn’t go up in elevation that much until we see a neurosurgeon.

We both agreed that we should turn around and drive back home (less than five hours). It’s not the fun decision, but it’s best for Tori. 

We are so disappointed for so many reasons, but we are going to make the best of Brennan’s time off and enjoy family time together.

The remodeling will still go as planned – we will just keep Tori in the basement away from the dust.

We are praying that we will get even one more opportunity to take Tori to California to be with my side of the family, but for now we are grateful for all the times she has already been there, and we’ll focus on that.

8 thoughts on “The Road Trip that Almost Was…

  1. Does she not have a shunt? I also have hydrocephalus (have had it since I was five weeks old) and I have never had a problem flying.

    Or is it because of the combination of the hydrocephalus plus her other issues?

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  2. Your Heavenly Father has surely directed your steps, as you made plans, and He has good things in store for you, as you continue to wait on Him and are strong and of good courage. May you continue to experience His Shalom as you trust in His total provision and continue to tenderly care for Victoria, this precious daughter, His servant, whom He has entrusted to you. We are praying for you, Lesa, Brennan and Victoria Ruth.

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  3. It was a good thing that you found out before the plane trip! I was recently on a trip and had a second eye sinus infection, the pain was so bad on decent that I thought my eye was going to come out! It was the worst thing ever. Hopefully your family can come in.
    Praying for Tori and the both of you always.
    God bless,
    Lisa Brasher

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  4. I know you previously told us that when you did go to California you went to Bethel Church in Redding. Right now, Behthel is all I listen to, and all the kids I nanny for want to listen to. I’ve watched numerous YouTube videos and we saw bethel live in Harrisburg I think last May. What was your experience like? Was there an overflow of people? My best friend lives in Seattle Washington, which is 9 hours from Bethel in Redding. I saw they have three services then a worship service from like 6-9. Did you participate in and of this? My best friend and I are road tripping the west coast down to San fansisco, where her brother lives. BUT we are absolutely most definitely spending the day at Bethel. Any advice? It’s a dream of mine to to go a Bethel worship service. And advice would be fantastic! Thank you!

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