“I know more about Krabbe than I’ll ever know about Collin.” Kevin Cushman My friend, Kevin, made this statement at a recent Krabbe panel in which we both participated and … Continue reading There are Stories to Tell and Lives to Save
Category: Tori
Act 133 of 2020: Implemented!
I’ve already posted about this on social media and on LDNBS.org but it felt necessary to also include it here because this is a monumental day. Today Pennsylvania became the … Continue reading Act 133 of 2020: Implemented!
The Brevity of Life
I’ve been thinking about death more than usual over the past year. And it’s not what you may be thinking. It all started with Tori. Before her diagnosis I don’t … Continue reading The Brevity of Life
Signed by Governor Wolf
In September, I was told it was “improbable but not impossible” to see SB983 progress because of our many delays (and a global pandemic). I took that as a challenge. … Continue reading Signed by Governor Wolf
Sweet Relief
This spreadsheet has been part of my daily life for over four years. I meticulously gathered contact info for all 253 elected officials, kept track of committees, when I contacted … Continue reading Sweet Relief
SB983 – PASSED UNANIMOUSLY!
Even just two weeks ago I was seriously questioning the outcome of SB983. I felt so uncertain after it seemingly became a partisan issue in the Human Services committee, and … Continue reading SB983 – PASSED UNANIMOUSLY!
SB983 – Out of House Human Services Committee
I was not adequately prepared for the level of stress and frustration that accompanied today’s proceedings. We knew that the Department of Health had been “shopping around” their amendments and … Continue reading SB983 – Out of House Human Services Committee
SB983 – Unanimous Senate Passage, Now to The House
I’m exhausted. Tuesday was a day of great celebration as SB983 passed the Pennsylvania Senate unanimously. Even getting to the floor was a serious accomplishment and I’m so grateful for … Continue reading SB983 – Unanimous Senate Passage, Now to The House
Strength & Scars
Today Caleb broke the handle off of my favorite coffee mug. This mug was given to me while Tori was sick and I love that it has both giraffes and … Continue reading Strength & Scars
Sometimes Grief Looks Like Clothing
I knew that we would have many practical tasks to handle once we found out that our embryo transfer had failed. A failed transfer meant that our family was complete … Continue reading Sometimes Grief Looks Like Clothing
Even So, Joy 