“I know more about Krabbe than I’ll ever know about Collin.” Kevin Cushman My friend, Kevin, made this statement at a recent Krabbe panel in which we both participated and … Continue reading There are Stories to Tell and Lives to Save
Tag: Tori
Signed by Governor Wolf
In September, I was told it was “improbable but not impossible” to see SB983 progress because of our many delays (and a global pandemic). I took that as a challenge. … Continue reading Signed by Governor Wolf
Sweet Relief
This spreadsheet has been part of my daily life for over four years. I meticulously gathered contact info for all 253 elected officials, kept track of committees, when I contacted … Continue reading Sweet Relief
SB983 – Out of House Human Services Committee
I was not adequately prepared for the level of stress and frustration that accompanied today’s proceedings. We knew that the Department of Health had been “shopping around” their amendments and … Continue reading SB983 – Out of House Human Services Committee
SB983 – Moving to the Floor
It’s been a very long ten days. Ten days ago we weren’t sure if SB983 (our Newborn Screening Legislation) was going to have a fighting chance this session. Ten days … Continue reading SB983 – Moving to the Floor
Strength & Scars
Today Caleb broke the handle off of my favorite coffee mug. This mug was given to me while Tori was sick and I love that it has both giraffes and … Continue reading Strength & Scars
Sometimes Grief Looks Like Clothing
I knew that we would have many practical tasks to handle once we found out that our embryo transfer had failed. A failed transfer meant that our family was complete … Continue reading Sometimes Grief Looks Like Clothing
Lament and Joy
A friend recently asked me a two-part question that I have been pondering for days now. She asked: “How has your story of walking through lament – and joy in … Continue reading Lament and Joy
Nineteen Months & Twenty-Eight Days
Sometimes I just don’t know what to say. I’ve had nearly twenty months to prepare and yet I’m still not sure what to write. I’ve felt some self-imposed pressure to … Continue reading Nineteen Months & Twenty-Eight Days
Hershey Bears’ Teddy Bear Toss Game 2019
As we wrote last week (see post here), we’ve been collecting giraffes since this summer in celebration of Tori turning five in Heaven. As of tonight we had 566 giraffes … Continue reading Hershey Bears’ Teddy Bear Toss Game 2019
