It was Brennan’s birthday, 2019. I secured a last minute meeting with a very influential person in the Pennsylvania legislature and, despite it being his birthday, Brennan happily stayed home … Continue reading What Will Be Your Moment?
Krabbe Moved Forward to Full Evidence Review
Today is a big day for the Krabbe community! The committee (HRSA) that decides which conditions are added to the federal Recommended Uniform Screening Panel (RUSP) voted UNANIMOUSLY today to … Continue reading Krabbe Moved Forward to Full Evidence Review
Book Review: The Master Craftsman
From the back of the book: In 1917, Alma Pihl, a master craftsman in the House of Fabergé, was charged to protect one of the greatest secrets in Russian history–an … Continue reading Book Review: The Master Craftsman
A New Chapter Begins
If you had asked me three days ago if I would ever go to grad school, I would have said no. I’ve thought about it off and on since I … Continue reading A New Chapter Begins
Comparison in Motherhood
I saw a post on Facebook today that made me feel many things all at once. It was a post by a mom in a large Facebook group known for … Continue reading Comparison in Motherhood
Book Review: Looking for Leroy
Looking for Leroy by Melody Carlson is one of the most relatable and real-life pieces of fiction I have read to date. From the back of the book: It’s official: … Continue reading Book Review: Looking for Leroy
Six Years – Celebrating Tori
When Tori passed away, Brennan and I made a commitment to always making March 27th a special, joy-filled day. After all, she’s having fun, so why shouldn’t we? We usually … Continue reading Six Years – Celebrating Tori
Six Years – The Impact
Six years ago today (at 9:05am) we said farewell to our beautiful daughter. That day, we went through the motions of implementing the decisions made months before – unwanted tasks … Continue reading Six Years – The Impact
Book Review: Until Leaves Fall in Paris
Until Leaves Fall in Paris is an intriguing and well-researched novel based in German-occupied France during WWII. The book not only tells a great story, but it leads the reader … Continue reading Book Review: Until Leaves Fall in Paris
Triumph and Purpose After Tragedy
As the sixth anniversary of Tori’s death quickly approaches (Sunday), and with the passing of my friend’s daughter Calliope yesterday, I have been reflecting a great deal on the beauty … Continue reading Triumph and Purpose After Tragedy
Even So, Joy 