Category: Newborn Screening

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  Remarks to the Forward Party National Women’s Committee

  August 19, 2025

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  Necessary but Unwanted Conversations

  July 31, 2025

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  Tori’s ELEVENTH Birthday (and how you can help make a difference)

  July 30, 2025

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  Congressional Briefing: The Price of Inaction

  May 20, 2025

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  Believe Us (and join us)

  April 3, 2025

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  Why I’m Running for Derry Township School District Board

  April 3, 2025

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  Advocacy Work is Not for the Faint of Heart

  February 13, 2025

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  2024 in Review: Personal & Advocacy-Related

  December 19, 2024

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  From Diagnosis to Determination

  February 13, 2024

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  Public Comments to the ACHDNC regarding Krabbe Disease Newborn Screening

  January 30, 2024