We were so blessed to have the amazing Erin Fortney Photography capture the birth of our twins because it has made me feel like I was more involved and actually … Continue reading Going Viral
When we found out we were having identical twins, I knew we were in for an adventure. I expected being exhausted, overwhelmed, and outnumbered; and yet, I had no idea just how much I could love these tiny humans. It feels like my heart will explode with hope, love, joy, and gratitude for these precious babies with whom the Lord has blessed us. ❤️
Today these handsome little men are three weeks old, and I can honestly say that it hasn’t been a blur. Thanks to my parents being here and helping – even during the night shift – I truly feel like I have been able to cherish each moment and not feel like time is flying by without my permission. Their month (plus) visit will end in two weeks and their absence will be strongly felt. And I will be much more tired 😉 For now, I’m taking full advantage of their presence and resting when I can.
My recovery has been as easy as with Tori – only the first four days were rough. I’m very thankful that both c-sections have been uneventful! I’m already back at pre-pregnancy weight since I was all baby, and I’m also thankful for that.
Though they are identical twins, Isaiah and Caleb have distinct differences – both in appearance and personality – and so many of the differences were observed even in the womb! We have found it relatively easy to tell them apart, thankfully.
Isaiah (baby A) is relaxed and “chill” most of the time – as he was in the womb. Easy going describes him to a tee, even when eating. He is sweet and patient and loves to snuggle.
Isaiah currently weighs 6lb 14oz and is 19.4 in long.
Caleb (baby B) is our feisty one – especially while eating! He is passionate about his food. He was the very active and particular one in the womb, constantly avoiding the monitors and kicking his brother, and that has certainly remained true (minus the kicking his brother part)!
Caleb currently weighs 6lbs 9.5oz and is 18.9in long. No, he didn’t shrink – we were originally told the wrong length at birth; he was 18 inches long.
The best part of their pediatrician visit yesterday was seeing their Newborn Screeing results and confirming that they are indeed KRABBE FREE. Seeing the words “within normal limits” almost brought me to tears, even though we knew they didn’t even carry the mutation. That confirmation means the world to us. ❤
They still don’t really acknowledge the other’s existence, something we find so funny. The twin bond seems to be delayed, haha. At least these amazing photos (by Mary Ramirez Photography) make it look like they love each other ;)s
(We were SO blessed to have the amazing Erin Fortney Photography capture my pregnancy, their birth (which deserves its own blog post), and their second day of life, and Mary Ramirez Photography captured their precious newborn stage so beautifully (photos above). Both ladies knew our story and offered their services as a tribute to Tori and to bless our family as we welcomed our “rainbow babies” into this world. We cannot recommend their services enough!)
They both LOVE to grunt and make noises in their sleep (and while awake) and it’s so funny. Sometimes it’s like they are communicating with each other while asleep. They are both great sleepers and wake up every three hours or so (you can count on Caleb waking up every three on the dot to eat!). We can’t wait until they are awake more so that we can have some fun.
They both make the same noise when they have to sneeze and it goes away – something that will be nearly impossible to capture on video, unfortunately, but it’s adorable.
They are both SO strong and can roll over on their side, mostly when mad 😉 They have decent head control already, too! We tried tummy time but that wasn’t a success – they both used their legs to basically crawl off of the pillow that was supporting them! Already!
They both LOVE their hands and arms and, though they don’t have great control over them yet, love to have them by their faces.
I’m sure we’ve observed more similarities, but I can’t remember right now 😉
Sure, we appreciate the newborn stage, and we don’t want to rush their development; but, there’s one thing for which we anxiously await: intentional smiles. Smiling is something Tori lost the ability to do at five months due to Krabbe affecting the cranial nerves, and it was heartbreaking. Right now they smile in their sleep, but I long for the first intentional smiles to happen. I can’t wait until my presence can evoke smiles and laughter and joy – right now I’m comfort and food…mostly just food 😉
Joy doesn’t begin to describe our life right now. We are so blessed by these precious babies and we know that our journey with Tori has only magnified our joy. We can’t wait to tell them all about her. ❤
This entire book process has made us laugh so many times because nothing has gone as expected.
But, our launch party was going to be smooth and perfect! The plans were set and everything was going to happen as we expected…
Or not 😉
When we arrived at the venue, no one was there to open it for us. We waited and waited, tried to contact the owners (who are out of town and this isn’t their fault at all!). It was cold and rainy, but we thought we could just do it in the courtyard outside the cafe.
Brennan’s sister, Kelly, had the idea to go around the corner to the movie theatre (CocoaPlex) to see if they could help, and they said we could set up in the lobby! 🍿 🎥 So we made a note (thanks, Gina!), moved our party over there, and had a great time! We had wanted a unique venue, and how much more unique can you get than the lobby of a movie theatre?! 😉 And, it was FREE, so we appreciated that!
We just happened to have a table in our van that worked well for signing books, and the bench in the lobby made a perfect display area.
As my book says many times, joy is a CHOICE, and tonight we chose to roll with the unexpected and make the most out of the evening…and it was GREAT. ❤
Thanks to all who came out to celebrate with us! Thanks to Karen for the amazing cupcakes! And huge thanks to CocoaPlex for allowing us to use your lobby!
There will always be reminders of Krabbe and its effects on Tori in the least expected places. The other night, for instance, on The Good Doctor, they had a patient … Continue reading Reminders of Krabbe and Choosing to Be Joyful
These words have stuck in my mind since meeting yesterday with the neurologist who diagnosed Tori. The sentence was spoken with the same gentleness she used on diagnosis day, and … Continue reading “She was abnormal from birth, you just didn’t know it.”
I haven’t changed my phone wallpaper in almost two years. My dad captured this moment only a couple of days before Tori went to Heaven and it’s the last non-selfie … Continue reading Completely Different
Now that my book is available for pre-order, it feels slightly weird to promote it. I worked for nearly three years on this project, and yet I am hesitant to … Continue reading It’s Not About The Money
It’s inevitable lately: when meeting new people who don’t know about Tori, they will ask if this pregnancy is my first.
Since I recently started a new job it’s happening fairly often. The first few times took me by surprise and I had to think quickly about how to answer: I could be truthful and tell them about Tori, or I could be mostly truthful since this is my first TWIN pregnancy and just say yes to avoid the uncomfortable truth.
So far, I’ve opted to just tell the truth, short and sweet, and allow the potential awkwardness (from their end) to exist. I look at it as an opportunity to tell others about Krabbe, about Tori’s amazing life, and about the faith that has sustained us.
In each instance, I recognize that I have a choice: I can be truthful with joy or I can be truthful with pain. I can embrace the joy we have found or I can be miserable.
I continue to embrace joy.
The title of my upcoming book is “Even So, Joy” which I derived from two sources: the song “It Is Well With My Soul” –
And Lord, haste the day when the faith shall be sight,
The clouds be rolled back as a scroll;
The trump shall resound, and the Lord shall descend,
Even so, it is well with my soul.
and Habakkuk 3:17-19 –
Even though the fig trees have no blossoms,
and there are no grapes on the vines;
even though the olive crop fails,
and the fields lie empty and barren;
even though the flocks die in the fields,
and the cattle barns are empty,
yet I will rejoice in the Lord!
I will be joyful in the God of my salvation!
The Sovereign Lord is my strength!
He makes me as surefooted as a deer,
able to tread upon the heights.
The Bible makes it abundantly clear that things are going to be imperfect here on earth. Once sin entered the world, it was inevitable that life would be terrible at times. Things are going to go wrong, our hearts are going to hurt, and sometimes it will seem unbearable.
But, the Bible also makes it clear that it can still be well with our hearts and our souls no matter what comes our way because all of this is temporary. Imperfect life on this earth should make us desire the perfection of what’s to come in Heaven.
For our present troubles are small and won’t last very long. Yet they produce for us a glory that vastly outweighs them and will last forever! – 2 Cor. 4:17
Dear brothers and sisters, when troubles of any kind come your way, consider it an opportunity for great joy. For you know that when your faith is tested, your endurance has a chance to grow. – James 1:2-3
We can rejoice, too, when we run into problems and trials, for we know that they help us develop endurance. And endurance develops strength of character, and character strengthens our confident hope of salvation. And this hope will not lead to disappointment. For we know how dearly God loves us, because he has given us the Holy Spirit to fill our hearts with his love. – Romans 5:3-5
Yet what we suffer now is nothing compared to the glory he will reveal to us later. For all creation is waiting eagerly for that future day when God will reveal who his children really are. Against its will, all creation was subjected to God’s curse. But with eager hope, the creation looks forward to the day when it will join God’s children in glorious freedom from death and decay. For we know that all creation has been groaning as in the pains of childbirth right up to the present time. And we believers also groan, even though we have the Holy Spirit within us as a foretaste of future glory, for we long for our bodies to be released from sin and suffering. We, too, wait with eager hope for the day when God will give us our full rights as his adopted children, including the new bodies he has promised us. We were given this hope when we were saved. (If we already have something, we don’t need to hope for it. But if we look forward to something we don’t yet have, we must wait patiently and confidently.) – Romans 8:18-25 (emphasis mine)
Our God is a God who redeems. He is worthy of all our praise, even when circumstances don’t appear to be praiseworthy. He knows the full story while we only know this current chapter.
You have a choice to make daily just like me; though our circumstances may be different, I know your life isn’t going perfectly.
Joy is something to be chosen and embraced in the uncertain times, in the “even though” or “even if” moments. For it is then that our faith grows stronger and we are reminded of God’s love, and the least we can do is share it with those who need it the most.
Always be real and genuine, of course, but always be pointing others toward the hope and joy we have in Jesus. It has been said that light shines brightest in the darkness, and this has certainly been proven to be true in my life. Our decision to choose joy after losing a child stands in stark contrast to the way much of the world would react. And that’s kind of the point. We should be different as Christians in this world.
I will continue to be honest and share that the twins are actually child two and three for us, not our first. I will embrace the potential discomfort and awkwardness that the other person may feel and I will point them to the glory of the Lord and the hope and joy He brings.
Even so, it is well with my soul.
Symposium time is here! It's the one time each year we are surrounded by people from all over the world who understand exactly what we have been through. It's the … Continue reading Hunter’s Hope Symposium 2017 – Day One
The common theme of the past six months has been hurdles. Things haven’t been going as smoothly as we would like and we’ve come up against some significant challenges.
- Buying this house came with one obstacle after another and cost more than we anticipated not only to buy it, but to do the necessary renovations (that still aren’t done because we ran out of money). It seems like all of our Dave Ramsey progress was lost and we’re having to start over again in our process to becoming debt-free.
- We drained our savings (and our HSA) to pay for IVF (though MUCH of the cost was donated by generous and amazing people and we are SO very grateful!), and it’s tough to rebuild it.
- We started an AirBnB in the apartment upstairs and have LOVED running it. It has brought joy to us and to the families and single mothers we have been able to serve and bless through this venture. It has also been hugely beneficial financially.
However, two of our neighbors are “uncomfortable” with the idea for ridiculous reasons (they don’t understand AirBnB at all, essentially) and they filed complaints with the township. We were forced to make a decision to either pay $450 and wait three months (and go to two zoning board hearings) to try to be rezoned for this type of use (no guarantee of approval), or give up and just get a tenant (less income, loss of the opportunity to help others enjoy Hershey and run an AirBnB; loss of space to host family and friends and bands (through RYFO.org) upstairs).
Ultimately, we’ve decided to try to find a tenant because some battles aren’t worth fighting. The township needs to modify their rules about AirBnB instead of trying to make it fit into other molds and making it impossible for residents to do. I am proud of my letter to the township supervisors and hope that it will make a difference in the future for property owners to use their property as they choose.
- I haven’t had much time to finish my book proposal or to find an agent, even though my manuscript has been complete (and edited) for six months. I’m struggling to remain positive about it being published, even though I believe that the Lord led me to write it for that purpose.
- I am committed to do many good things, but finding a balance and remaining disciplined has been a challenge.
Even so, it is well with our souls.
It hasn’ t been ALL bad, but the hard things in life tend to overshadow the good; when we focus on the positive we realize that we have had some GREAT things happen:
- We thoroughly enjoyed our trip to California, Oregon, Washington, and ALASKA in June and returned home feeling rejuvenated even though the trip was exhausting. Seeing the beauty of God’s creation and spending treasured time with family was worth every lost minute of sleep.
- We found out that we have THREE embryos (out of the five) that are healthy! Two are not even carriers of Krabbe! The fourth embryo needs to be retested, and the fifth has chromosomal abnormalities that are not survivable. We are thankful for these 3-4 and will hopefully do the first transfer in August.
- Thanks to my dad spending two weeks out here, we’ve nearly completed the basement projects (laundry room/bathroom drywall and paint, etc.). We’re going to be ready for hosting bands and other guests so soon! Since we’re giving up the AirBnB this space will allow us to continue to minister to bands through RYFO – an amazing network of host homes for touring musicians.
- Brennan and I are trying to become much more disciplined than we are currently in every area of our lives. It’s a struggle but we must overcome and become self-disciplined.
Through it all, my heart has remained at peace because I trust the Lord completely and I have absolute faith that this is all happening for a reason. As the popular song states, “Let go my soul and trust in Him, the waves and wind still know His name…” He is still on the throne, He is still in charge, and, most importantly, He still LOVES us. In those moments when I feel worry start to encroach on my peace, I stop and pray and remind myself that He’s got this.
And so we press on, knowing that it will all turn out alright.