I had one of those “I feel like I’m failing” moments yesterday when both babies were fussy (most of the day) and I couldn’t figure out what they needed. All … Continue reading Expectations and Grace
We’ve never written about this before, but I think it’s important. Let me preface with this: we know many people do things differently than we do so there’s no judgment … Continue reading Why We Don’t Visit Tori’s Grave
Probably the strangest blog post title I’ve ever had, but it’s worth celebrating. It may seem laughable to most, but for a mom of 11 week old twins this is a … Continue reading I made myself a sandwich today and I actually got to eat it…
In the exhaustion that accompanies newborn twins, I completely forgot to share our birth photos! We were so blessed to have Erin Fortney Photography present so that I didn’t miss a thing and she exceeded our expectations. Far exceeded.
If you live in Central Pennsylvania and are pregnant, please consider hiring a birth photographer – specifically Erin! – because these are moments you will treasure for a lifetime.
When you have a c-section you are surrounded by blue sheets and it feels like you aren’t able to experience the birth of your children fully. I felt like I missed the first hour of Tori’s life and we only have five or so pictures of what happened while I was on the operating table. Because of this, I didn’t want to miss any of the twins’ first moments, and Erin made that happen!
Here are some of our favorites – it was hard to choose but I couldn’t upload them ALL. 😊❤️ We are so thankful for Erin and cannot recommend her highly enough. And I promise I wasn’t asked to do this or paid for my opinions 😉 People like her are rare these days and I am so thankful that Tori brought us together. ❤
We were so blessed to have the amazing Erin Fortney Photography capture the birth of our twins because it has made me feel like I was more involved and actually … Continue reading Going Viral
When we found out we were having identical twins, I knew we were in for an adventure. I expected being exhausted, overwhelmed, and outnumbered; and yet, I had no idea just how much I could love these tiny humans. It feels like my heart will explode with hope, love, joy, and gratitude for these precious babies with whom the Lord has blessed us. ❤️
Today these handsome little men are three weeks old, and I can honestly say that it hasn’t been a blur. Thanks to my parents being here and helping – even during the night shift – I truly feel like I have been able to cherish each moment and not feel like time is flying by without my permission. Their month (plus) visit will end in two weeks and their absence will be strongly felt. And I will be much more tired 😉 For now, I’m taking full advantage of their presence and resting when I can.
My recovery has been as easy as with Tori – only the first four days were rough. I’m very thankful that both c-sections have been uneventful! I’m already back at pre-pregnancy weight since I was all baby, and I’m also thankful for that.
Though they are identical twins, Isaiah and Caleb have distinct differences – both in appearance and personality – and so many of the differences were observed even in the womb! We have found it relatively easy to tell them apart, thankfully.
Isaiah (baby A) is relaxed and “chill” most of the time – as he was in the womb. Easy going describes him to a tee, even when eating. He is sweet and patient and loves to snuggle.
Isaiah currently weighs 6lb 14oz and is 19.4 in long.
Caleb (baby B) is our feisty one – especially while eating! He is passionate about his food. He was the very active and particular one in the womb, constantly avoiding the monitors and kicking his brother, and that has certainly remained true (minus the kicking his brother part)!
Caleb currently weighs 6lbs 9.5oz and is 18.9in long. No, he didn’t shrink – we were originally told the wrong length at birth; he was 18 inches long.
The best part of their pediatrician visit yesterday was seeing their Newborn Screeing results and confirming that they are indeed KRABBE FREE. Seeing the words “within normal limits” almost brought me to tears, even though we knew they didn’t even carry the mutation. That confirmation means the world to us. ❤
They still don’t really acknowledge the other’s existence, something we find so funny. The twin bond seems to be delayed, haha. At least these amazing photos (by Mary Ramirez Photography) make it look like they love each other ;)s
(We were SO blessed to have the amazing Erin Fortney Photography capture my pregnancy, their birth (which deserves its own blog post), and their second day of life, and Mary Ramirez Photography captured their precious newborn stage so beautifully (photos above). Both ladies knew our story and offered their services as a tribute to Tori and to bless our family as we welcomed our “rainbow babies” into this world. We cannot recommend their services enough!)
They both LOVE to grunt and make noises in their sleep (and while awake) and it’s so funny. Sometimes it’s like they are communicating with each other while asleep. They are both great sleepers and wake up every three hours or so (you can count on Caleb waking up every three on the dot to eat!). We can’t wait until they are awake more so that we can have some fun.
They both make the same noise when they have to sneeze and it goes away – something that will be nearly impossible to capture on video, unfortunately, but it’s adorable.
They are both SO strong and can roll over on their side, mostly when mad 😉 They have decent head control already, too! We tried tummy time but that wasn’t a success – they both used their legs to basically crawl off of the pillow that was supporting them! Already!
They both LOVE their hands and arms and, though they don’t have great control over them yet, love to have them by their faces.
I’m sure we’ve observed more similarities, but I can’t remember right now 😉
Sure, we appreciate the newborn stage, and we don’t want to rush their development; but, there’s one thing for which we anxiously await: intentional smiles. Smiling is something Tori lost the ability to do at five months due to Krabbe affecting the cranial nerves, and it was heartbreaking. Right now they smile in their sleep, but I long for the first intentional smiles to happen. I can’t wait until my presence can evoke smiles and laughter and joy – right now I’m comfort and food…mostly just food 😉
Joy doesn’t begin to describe our life right now. We are so blessed by these precious babies and we know that our journey with Tori has only magnified our joy. We can’t wait to tell them all about her. ❤
It’s inevitable lately: when meeting new people who don’t know about Tori, they will ask if this pregnancy is my first.
Since I recently started a new job it’s happening fairly often. The first few times took me by surprise and I had to think quickly about how to answer: I could be truthful and tell them about Tori, or I could be mostly truthful since this is my first TWIN pregnancy and just say yes to avoid the uncomfortable truth.
So far, I’ve opted to just tell the truth, short and sweet, and allow the potential awkwardness (from their end) to exist. I look at it as an opportunity to tell others about Krabbe, about Tori’s amazing life, and about the faith that has sustained us.
In each instance, I recognize that I have a choice: I can be truthful with joy or I can be truthful with pain. I can embrace the joy we have found or I can be miserable.
I continue to embrace joy.
The title of my upcoming book is “Even So, Joy” which I derived from two sources: the song “It Is Well With My Soul” –
And Lord, haste the day when the faith shall be sight,
The clouds be rolled back as a scroll;
The trump shall resound, and the Lord shall descend,
Even so, it is well with my soul.
and Habakkuk 3:17-19 –
Even though the fig trees have no blossoms,
and there are no grapes on the vines;
even though the olive crop fails,
and the fields lie empty and barren;
even though the flocks die in the fields,
and the cattle barns are empty,
yet I will rejoice in the Lord!
I will be joyful in the God of my salvation!
The Sovereign Lord is my strength!
He makes me as surefooted as a deer,
able to tread upon the heights.
The Bible makes it abundantly clear that things are going to be imperfect here on earth. Once sin entered the world, it was inevitable that life would be terrible at times. Things are going to go wrong, our hearts are going to hurt, and sometimes it will seem unbearable.
But, the Bible also makes it clear that it can still be well with our hearts and our souls no matter what comes our way because all of this is temporary. Imperfect life on this earth should make us desire the perfection of what’s to come in Heaven.
For our present troubles are small and won’t last very long. Yet they produce for us a glory that vastly outweighs them and will last forever! – 2 Cor. 4:17
Dear brothers and sisters, when troubles of any kind come your way, consider it an opportunity for great joy. For you know that when your faith is tested, your endurance has a chance to grow. – James 1:2-3
We can rejoice, too, when we run into problems and trials, for we know that they help us develop endurance. And endurance develops strength of character, and character strengthens our confident hope of salvation. And this hope will not lead to disappointment. For we know how dearly God loves us, because he has given us the Holy Spirit to fill our hearts with his love. – Romans 5:3-5
Yet what we suffer now is nothing compared to the glory he will reveal to us later. For all creation is waiting eagerly for that future day when God will reveal who his children really are. Against its will, all creation was subjected to God’s curse. But with eager hope, the creation looks forward to the day when it will join God’s children in glorious freedom from death and decay. For we know that all creation has been groaning as in the pains of childbirth right up to the present time. And we believers also groan, even though we have the Holy Spirit within us as a foretaste of future glory, for we long for our bodies to be released from sin and suffering. We, too, wait with eager hope for the day when God will give us our full rights as his adopted children, including the new bodies he has promised us. We were given this hope when we were saved. (If we already have something, we don’t need to hope for it. But if we look forward to something we don’t yet have, we must wait patiently and confidently.) – Romans 8:18-25 (emphasis mine)
Our God is a God who redeems. He is worthy of all our praise, even when circumstances don’t appear to be praiseworthy. He knows the full story while we only know this current chapter.
You have a choice to make daily just like me; though our circumstances may be different, I know your life isn’t going perfectly.
Joy is something to be chosen and embraced in the uncertain times, in the “even though” or “even if” moments. For it is then that our faith grows stronger and we are reminded of God’s love, and the least we can do is share it with those who need it the most.
Always be real and genuine, of course, but always be pointing others toward the hope and joy we have in Jesus. It has been said that light shines brightest in the darkness, and this has certainly been proven to be true in my life. Our decision to choose joy after losing a child stands in stark contrast to the way much of the world would react. And that’s kind of the point. We should be different as Christians in this world.
I will continue to be honest and share that the twins are actually child two and three for us, not our first. I will embrace the potential discomfort and awkwardness that the other person may feel and I will point them to the glory of the Lord and the hope and joy He brings.
Even so, it is well with my soul.
As I type this, I am halfway through the first trimester already – so, our IVF was successful! However, it didn’t go as we had anticipated.
On September 1, we drove to Towson, MD for the transfer. The entire process lasted about ten minutes but the transfer itself was about one second! We were given a picture of our two precious embryos as they were hatching from their shells.
We put in two embryos because we really wanted twins, but we also did it just in case only one made it. Financially it was necessary because this transfer was already paid for but subsequent ones will cost around $4,000 each. We needed this one to work.
The transfer was quick but the waiting was long. Thankfully we were both distracted by the happenings in our lives and didn’t have much time to wonder if I was pregnant. The pregnancy test wasn’t until September 14, but while I was visiting family in California I took a test and it was positive. It was a super faint line, but there was a line!
On September 14, I had blood drawn and received the call that afternoon that I was indeed pregnant and that my HCG numbers were great – 971! They said it was too early to know if there were twins in there based on the number. More blood was drawn a few days later and my HCG was close to 6,000.
We had our first ultrasound on September 25 – also Brennan’s birthday. At first we were only seeing one baby and our hearts fell. The technician then said, “you’re having identical twins!”
To say that news was shocking is an understatement, as it’s actually quite rare – even in IVF – for embryos to split. We’re talking less than 2% chance. We were both shocked and saddened at the same time because this means that we lost an embryo.
The funniest part of all of this is that we now have no idea what we’re having! We knew when we put in the boy and the girl…but now we don’t know which embryo split! God has such a sense of humor! We will be happy no matter what we’re having, but we’re hoping these are boys simply because it’s our only shot at boys – our remaining frozen embryo is a girl.
Both babies have strong heartbeats (141 at the seven week ultrasound) and are growing right on schedule. I feel fine and have no pregnancy symptoms aside from being a little more tired. My pregnancy with Tori was easy with no morning sickness so I’m praying for the same with the twins!
I have 1-2 more weeks of being seen at Shady Grove Fertility before I transfer to my doctor in Hershey. I cannot recommend Shady Grove highly enough – they are the best at what they do and have been so good to us!
It has been quite the adventure. It hasn’t always been easy and I’m growing weary of the nightly progesterone shots (and the side effects that brings). But, it’s beyond worth it to know that I’m carrying precious Krabbe-free twins (they aren’t even carriers!)!
Thank you all for continuing to pray for us and support us. Please keep praying for the twins – specifically that they are in their own sacs – and for an uneventful and full-term pregnancy. My goal is to carry them until at least 36 weeks, and preferably beyond that. ❤
God is so good and we are so thankful that He has made this possible.
I’ve mentioned before that ever since Tori went to Heaven I’ve felt quiet, as though I have nothing to say. And so I’ve stayed quiet, not wanting to force the words just for the sake of writing.
Well, I finally feel as though I have something about which I can write.
Pregnancy and Parenting After Loss.
As the date for our embryo transfer draws nearer, I have so many thoughts and feelings running through my mind and heart. We will be pregnant soon! I honestly feel like I’m already “nesting” even though I’m not even pregnant yet. Brennan can attest to this, haha. Granted, that’s partially because we still haven’t really moved into our house yet and I’m ready to be SETTLED. But I digress. My heart longs to be pregnant, to have the hope of future children.
I just want to be a mother again, to hold and care for these precious babies who are currently frozen.
But there’s a lingering fear that I can’t quite chase away – a fear that one or even both of the embryos won’t attach. That I will miscarry. That we will have two or three children in Heaven and not just one. There’s little reason to think this will happen, says my doctor. I’m healthy, fertile, and have no reason to believe that the embryos won’t attach. We’ve seen how God has moved mountains to make this even possible. So why are these fears so present?
I have a feeling that parenting any child after losing Tori is going to be a greater blessing than we can imagine and yet contain the potential for greater fear than we’ve ever had before. Any symptom that reminds me of Krabbe. If they have reflux like we thought Tori did. If they have any developmental delays. Anything like that will have the potential to throw me back into the pre-diagnosis days with Tori, wondering if the genetic testing was wrong. Wondering if they do have Krabbe. I have a feeling this will be a challenge to overcome.
I’m not one to be fearful, really ever. I trust the Lord and I believe that He has me in His hands. I believe that He is in control and that He knows exactly what will become of these precious frozen embryos. So I must surrender, moment by moment, any fear or doubts that creep into my mind, because I know that they aren’t from Him.
I will continue to process my thoughts and emotions about all of this as we progress though pregnancy and parenthood after losing Tori. I pray that my transparency is a blessing to others and that the Lord will continue to work in and through our lives.
Please pray for our embryos – our son and our daughter: pray that they will survive the thaw, that they will attach to my uterus quickly, and that they will develop into healthy, thriving babies. September 1 is quickly approaching!