There will always be reminders of Krabbe and its effects on Tori in the least expected places. The other night, for instance, on The Good Doctor, they had a patient … Continue reading Reminders of Krabbe and Choosing to Be Joyful
Next Tuesday is BIG – it’s the second anniversary of Tori’s “relocation” to Heaven and we have so many awesome things in store for her Day of Triumph/Triumph Day! Lesa’s … Continue reading Tori’s Day of Triumph – March 27th
Today’s the LAST day of our free raffle for two copies of my book, “Even So, Joy” – one hardcover and one paperback!
You can enter HERE. Winners will be announced tomorrow!
Or, if you’d rather just purchase the book, you can do that HERE.
We so appreciate all of your support in getting the word out!
I (finally) received my first copy of my published book today!
As I held it in my hands I was overwhelmed by two emotions: joy and heartache.
How fitting that the quote I chose for the back of the book talks about that very conflict.
I felt such joy at knowing that my hard work had paid off, that Tori’s story was finally being told in more depth than ever before, and that new people will learn about her and about Krabbe. I’m finding such unexpected joy in being able to say I’m an AUTHOR.
But, then I was filled with sorrow because I never should have had to write this book in the first place. No one should lose their child, especially to a disease like Krabbe. I would do anything to have Tori back, healthy, running around like an almost-four-year-old would be doing. Anything.
I allowed myself to embrace the tears (likely also caused by pregnancy hormones 😉 ) for a few moments and then I reminded myself of what I know to be true: that all is well. And I focused on the joy that she brought to our lives, the knowledge that she is in Heaven and we will be with her soon (but not quite yet, as Jim Kelly likes to say), and on the fact that God is going to continue to use her – and us – to save lives as we fight on for Newborn Screening for Krabbe.
As of now, my book is sitting at #1,336 overall on Amazon. That sounds far from #1, but it’s far higher than 8,000,000 (the number of books for sale on Amazon). It’s also the #1 new release in the Christian Families category. And we are blown away. While we don’t yet know how this translates into numbers of books sold, we’re humbled at these stats.
Numbers matter because Tori matters, because increased awareness is based on the number of people who know about Krabbe, and because numbers will generate revenue for us to donate to Hunter’s Hope.
So, if you haven’t picked up a copy (or several), please do. It would mean so much to us.
Now that my book is available for pre-order, it feels slightly weird to promote it. I worked for nearly three years on this project, and yet I am hesitant to … Continue reading It’s Not About The Money