Tori began to show symptoms at five months. Krabbe hit fast and hard, and it robbed her of her smile, and other abilities, immediately. She went to Heaven at 20 months.
But, it didn’t have to be this way. Later this month you will learn about the importance of Newborn Screening and the treatment that is possible if Krabbe is caught at birth.
Over the next few days you will learn about each type and how it presents. Our daughter had Early Infantile Krabbe.
Our daughter, Tori, first lost her smile at five months; she never got it back.
Nerves control everything – even smiling. We treasure the smiles from our sons so much more because of this.
We have seen Krabbe babies of every color. While it is most prevalent in Scandinavian and Jewish populations, it exists in every race.