Tag: Hope

Krabbe Awareness Month: Day Twenty

Because Krabbe is an autosomal recessive mutation, the chances per pregnancy are 25% that the child will be affected, 50% that they will be a carrier, and 25% that they will be unaffected. That may seem like a low chance that a couple would have an affected child, but Dr. Escolar told us that she often sees repeats in families.

On diagnosis day we were told two things in the same minute: Tori had Krabbe and was dying, and that we shouldn’t have more children. We were devastated.

Thankfully, we found out about IVF as an option to have healthy children and our twins are not even carriers of Krabbe. ❤

There is HOPE for families like us to have more children, whether through IVF, adoption, or foster care. Krabbe doesn’t have to mean the end of your dream of having a family. 

We Have Time

Our boys are sixteen months old now. They walk everywhere, they love being outside, and they love experiencing new things.

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Most of the time I feel as though we have struck a great balance between being home and going out to do things, but some days I feel this pressure to do everything. If I find out we have to miss some event or function, I feel like they are missing out. I feel pressure.

This isn’t a pressure induced by social media, however. Yesterday I realized that it’s because all I’ve ever known as a parent is limited time. A deadline. A looming end point and the danger of permanent regret. 

With Tori, we had less than two years to try to give her all the experiences we could manage. Krabbe robbed us of time. Krabbe made us feel rushed. We did things she was far too young to appreciate because there was pressure. We didn’t have time to waste. We didn’t want to have any regrets for her, or for us as a family. And, thankfully, we don’t.

Yet, I have to stop and remember that, Lord willing, we have time with the twins. We don’t have to do everything right now, and we don’t have to be disappointed if we don’t take them everywhere to do it all at this age. They don’t know what they’re missing, and if they are happy, that is all that matters. We have the freedom to wait until they can better appreciate whatever it is we want them to see/experience. 

I’m praying that my heart can rest in that hopeful knowledge, that I can be better at just taking one day at a time, one moment at a time, and providing the boys with a well-balanced life. Rest is equally as important as stimulation and experiences, and I pray that we as parents will have the wisdom to do what is best.

I’m so thankful for this gift of time.

Book Review: The Jesus Who Surprises by Dee Brestin

img_8482The Jesus Who Surprises: Opening Our Eyes to His Presence in All of Life and Scripture is an excellent study – one I enjoyed from beginning to end.

The author looks at the entire Bible to show us glimpses of Jesus where we may not expect to see Him. She masterfully shows that the Bible is indeed one connected story, one of hope, redemption, and love. She also approaches important topics like suffering, and she shows how those things produce a joy like none other (something I know from experience). I thoroughly enjoyed this study and repeatedly found myself excited and encouraged by her words. That isn’t something I can often say.

Here is one of my favorite quotes:

When we realize that the Lord is in control, a peace comes to us, despite the suffering. We realize that this shaking is temporary and that we have an inheritance that can never be taken from us. (Page 123)

I especially loved – and learned from – the third part, looking at Isaiah and what is in store for us. She summed up the whole study so well in the last sentence:

My hope is that seeing this same story from Genesis to Revelation will give you great confidence in the reliability of the Scriptures and the truths they hold. For the Jesus that surprised the two on the road to Emmaus, and surprises us in our everyday lives, is not at all finished surprising us.”

Dee also challenges the reader to see Jesus at work every day – something I’ve practiced for years thanks to missional training I received. He is always at work, you just have to see it. This practice alone can significantly change one’s perspective.

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This beautiful study can be done individually or as a group. Dee provides thoughtful questions to encourage a deeper study of Scripture at the end of each chapter.

I highly recommend this book and I look forward to reading more of her studies.

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I was given a free copy of this book from the publisher in exchange for my honest review.

Sitting in the Meantime

When we saw TobyMac in March, he said something that resonated with me. He commented about the length of time between his album releases and said that’s because he needs to live life between albums so that he has something to sing about.

When I wrote the one and only song I’ve ever written, I told God that I was okay with never writing one again because it took sending Tori to Heaven to have the inspiration and ability to write it. If that’s what it takes, I’m good now 😉


I’ve been mostly quiet on here for a while now because life hasn’t given me much content lately – which is perfectly okay! I am completely satisfied with life going smoothly, which it mostly has been (normal mother-of-twins ordeals aside).

However, as I blogged earlier this week, I’m now in a situation providing me with content…a situation I sincerely wish could be resolved but it’s out of my control at this point.

I’ve been sitting in silence, not pressing this friend to reconcile or respond, not offering further explanation as to my intent or my heart. Just waiting.


Someone recently used the phrase “sitting in the meantime” and I loved it. That’s where I am – sitting in the period of waiting for resolution. I’ve relinquished control (difficult) and am being still before the Lord, waiting for His guidance and for my friend to reach out IF they choose to do so.

And it’s challenging.

Because, in the meantime, I just want to fix things. I want to talk. I want to meet up for coffee and explain, yet again, that my words were not said out of anger but love. That there has to be a huge misunderstanding because I thought everything was good between us, but clearly there was some harbored resentment that caused this to blow up. That everyone makes mistakes and grace should be offered abundantly. But I can’t. Not until the other person reaches out.

I don’t like being in the meantime. There is no defined timeline, no rule book, nothing for me to accomplish except to wait and to pray, to work on my own heart and to ask God to use this to grow my own character.

Life will go on if this friendship ends, but not without some grief on my part. Unresolved conflict is so very hard for me to live with especially when I feel I’ve done all I can to live at peace with others (Romans 12:18).

If you find yourself – now or in the future – “sitting in the meantime” with no end in sight, run to the Lord. Read His Word. Trust Him. Remember all the great things He has done in your life and in the lives of others. He isn’t just watching from the sidelines – He is right there in the meantime with you.