Tag: Hope

Krabbe Awareness Month: Day Twenty

Because Krabbe is an autosomal recessive mutation, the chances per pregnancy are 25% that the child will be affected, 50% that they will be a carrier, and 25% that they will be unaffected. That may seem like a low chance that a couple would have an affected child, but Dr. Escolar told us that she often sees repeats in families.

On diagnosis day we were told two things in the same minute: Tori had Krabbe and was dying, and that we shouldn’t have more children. We were devastated.

Thankfully, we found out about IVF as an option to have healthy children and our twins are not even carriers of Krabbe. ❤

There is HOPE for families like us to have more children, whether through IVF, adoption, or foster care. Krabbe doesn’t have to mean the end of your dream of having a family. 

We Have Time

Our boys are sixteen months old now. They walk everywhere, they love being outside, and they love experiencing new things.

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Most of the time I feel as though we have struck a great balance between being home and going out to do things, but some days I feel this pressure to do everything. If I find out we have to miss some event or function, I feel like they are missing out. I feel pressure.

This isn’t a pressure induced by social media, however. Yesterday I realized that it’s because all I’ve ever known as a parent is limited time. A deadline. A looming end point and the danger of permanent regret. 

With Tori, we had less than two years to try to give her all the experiences we could manage. Krabbe robbed us of time. Krabbe made us feel rushed. We did things she was far too young to appreciate because there was pressure. We didn’t have time to waste. We didn’t want to have any regrets for her, or for us as a family. And, thankfully, we don’t.

Yet, I have to stop and remember that, Lord willing, we have time with the twins. We don’t have to do everything right now, and we don’t have to be disappointed if we don’t take them everywhere to do it all at this age. They don’t know what they’re missing, and if they are happy, that is all that matters. We have the freedom to wait until they can better appreciate whatever it is we want them to see/experience. 

I’m praying that my heart can rest in that hopeful knowledge, that I can be better at just taking one day at a time, one moment at a time, and providing the boys with a well-balanced life. Rest is equally as important as stimulation and experiences, and I pray that we as parents will have the wisdom to do what is best.

I’m so thankful for this gift of time.

Book Review: The Jesus Who Surprises by Dee Brestin

img_8482The Jesus Who Surprises: Opening Our Eyes to His Presence in All of Life and Scripture is an excellent study – one I enjoyed from beginning to end.

The author looks at the entire Bible to show us glimpses of Jesus where we may not expect to see Him. She masterfully shows that the Bible is indeed one connected story, one of hope, redemption, and love. She also approaches important topics like suffering, and she shows how those things produce a joy like none other (something I know from experience). I thoroughly enjoyed this study and repeatedly found myself excited and encouraged by her words. That isn’t something I can often say.

Here is one of my favorite quotes:

When we realize that the Lord is in control, a peace comes to us, despite the suffering. We realize that this shaking is temporary and that we have an inheritance that can never be taken from us. (Page 123)

I especially loved – and learned from – the third part, looking at Isaiah and what is in store for us. She summed up the whole study so well in the last sentence:

My hope is that seeing this same story from Genesis to Revelation will give you great confidence in the reliability of the Scriptures and the truths they hold. For the Jesus that surprised the two on the road to Emmaus, and surprises us in our everyday lives, is not at all finished surprising us.”

Dee also challenges the reader to see Jesus at work every day – something I’ve practiced for years thanks to missional training I received. He is always at work, you just have to see it. This practice alone can significantly change one’s perspective.

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This beautiful study can be done individually or as a group. Dee provides thoughtful questions to encourage a deeper study of Scripture at the end of each chapter.

I highly recommend this book and I look forward to reading more of her studies.

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I was given a free copy of this book from the publisher in exchange for my honest review.

Sitting in the Meantime

When we saw TobyMac in March, he said something that resonated with me. He commented about the length of time between his album releases and said that’s because he needs to live life between albums so that he has something to sing about.

When I wrote the one and only song I’ve ever written, I told God that I was okay with never writing one again because it took sending Tori to Heaven to have the inspiration and ability to write it. If that’s what it takes, I’m good now 😉


I’ve been mostly quiet on here for a while now because life hasn’t given me much content lately – which is perfectly okay! I am completely satisfied with life going smoothly, which it mostly has been (normal mother-of-twins ordeals aside).

However, as I blogged earlier this week, I’m now in a situation providing me with content…a situation I sincerely wish could be resolved but it’s out of my control at this point.

I’ve been sitting in silence, not pressing this friend to reconcile or respond, not offering further explanation as to my intent or my heart. Just waiting.


Someone recently used the phrase “sitting in the meantime” and I loved it. That’s where I am – sitting in the period of waiting for resolution. I’ve relinquished control (difficult) and am being still before the Lord, waiting for His guidance and for my friend to reach out IF they choose to do so.

And it’s challenging.

Because, in the meantime, I just want to fix things. I want to talk. I want to meet up for coffee and explain, yet again, that my words were not said out of anger but love. That there has to be a huge misunderstanding because I thought everything was good between us, but clearly there was some harbored resentment that caused this to blow up. That everyone makes mistakes and grace should be offered abundantly. But I can’t. Not until the other person reaches out.

I don’t like being in the meantime. There is no defined timeline, no rule book, nothing for me to accomplish except to wait and to pray, to work on my own heart and to ask God to use this to grow my own character.

Life will go on if this friendship ends, but not without some grief on my part. Unresolved conflict is so very hard for me to live with especially when I feel I’ve done all I can to live at peace with others (Romans 12:18).

If you find yourself – now or in the future – “sitting in the meantime” with no end in sight, run to the Lord. Read His Word. Trust Him. Remember all the great things He has done in your life and in the lives of others. He isn’t just watching from the sidelines – He is right there in the meantime with you.

The Power of Words

I was in sixth grade when I realized the power of words for the first time. 

For whatever reason, I decided to write a letter – a very mean one – to someone who was a friend of mine, a friend who had done nothing wrong. To this day I have no idea why I wrote it, but I have never forgotten the lesson learned. That girl and I were never friends again and because we had hung out in the same group of friends, it made my life so awkward. I still feel shame when I think back to how I made that girl cry.

It happened again in high school with my best friend. I decided that I didn’t want to be friends anymore (eye roll) and wrote a letter. Sigh. My parents kept telling me to stop writing letters and that was the last time, THANKFULLY. She and I are still friends to this day (31 years and counting) and our friendship is stronger because of it, I think.

I can’t go back to sixth grade or high school (THANKFULLY) but I’ve tried to be very careful with my words ever since. While I certainly still make mistakes, I do what I can to avoid having difficult conversations via text/email because of the inability to read tone. I choose my words carefully and use abundant emojis to convey my emotions.

Everyone has a lens through which they perceive and process life, and we all have our own “settings” and filters through which we process information; because of that, I also do everything I can to assume the best when others write to me and never assume that they are being rude, mean, or angry. I read the tone as being friendly unless proven otherwise. I don’t know what may be behind the words, I don’t know what mood they are in or what is happening in their life, so I choose to believe they are being kind.

This week I was reminded that I can only control my words and my responses. I was reminded that, as well-meaning and good as I may think my words are, they are up for interpretation by the receiver and the result may be less than ideal.

I have, yet again, found myself in a situation where I may be losing a friend because of words (but NOT with a mean letter like sixth grade or high school!) even though that is the complete opposite of what I want. And it has been devastating. Looking back, I can see why this person took what I said the way that they did, and I can also see how this could have been avoided entirely had I done it in person. It was just easier to text, so I did. And now we’re in a mess.

I don’t write this for pity (I made the mistake). I don’t write this for gossip (hence the lack of details). I write this to encourage you to stop having difficult conversations with written words. Pick up the phone. Get together. FaceTime. Hear the person’s tone. Assume the best. Be willing to accept feedback and constructive criticism from those who love you. Offer abundant grace to your imperfect friend/family member. Don’t allow friendships to be destroyed because of misunderstandings that could have been avoided. 

I clearly still need to learn this lesson. Maybe this is why the Bible is filled with verses about using your words wisely.

I’m still praying that things will resolve and that we can grow stronger because of this conflict. But, I also know that we live in an imperfect world with imperfect humans and that may not be the reality. So, while I am grieving this apparent loss, I’m also renewing my determination to be careful with my words and to never have discussions via writing when they can be better resolved in person.

Friendships are too rare and too valuable to be lost over misunderstandings. Be wise with your words.

Three Years: Tori’s Resurrection Day

It’s amazing that it has already been three years since our precious Tori entered the arms of Jesus.

Today could be a devastating, sad day. We could choose to dwell on what we “lost” that day, how our world changed, and that would be an acceptable way to spend the day given the circumstances. I mean, we did lose a child. The world would understand. But, as always, we choose to place our focus on where she is and how she is doing, as well as the fact that we will see her again someday and will never have to say goodbye.

Instead of the worldly form of grief, we choose peace.
Instead of blaming God, we choose faith.
Instead of tears, we choose joy.

We decided two years ago that we would always spend Tori’s Resurrection Day (also called Tori’s Day of Triumph) doing something fun as a family. The activities may vary from year to year, depending on the age of her siblings and their interests, but we want to always celebrate her life and her current/forever place of residence.

So, today we had breakfast at Cracker Barrel and had some fried apples (something she LOVED) together:

We went to see Tori’s tree at the Hershey Gardens for our second annual family photo in front of the tree:

We read “I Can Only Imagine: A Friendship with Jesus Now and Forever” to the boys – something we will do each year as we teach them about Tori, Heaven, and faith in Jesus.

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But most importantly, we enjoyed our time as a family:


I promise we aren’t perfect Christians, nor are we perfect people. We sought out the biblical examples of living after a loved one’s death, and we believe that this is how we are to live. The New Testament, especially, is FILLED with verses about death of fellow believers and how Christians should respond, and it’s always referenced with joy. With peace.

We trust that the God who created the universe can be trusted with every detail of our lives, even when we don’t understand the reasons. 

(If you’d like to hear me go more into depth about this and more, here’s a link to a speaking engagement I had in January. You can also read more in my book, Even So, Joy.)

One of the questions I ask in Even So, Joy is this: If we (as followers of Jesus) truly believe God and His promises, if we truly believe that Heaven is where we belong and where we will spend eternity, then why do we follow the world’s example and allow sorrow and grief to overcome us? It doesn’t have to be this way. 

Would anyone CHOOSE to lose a child? Absolutely not. And yet, we CAN choose our reaction and how we live our lives afterward. We see the example of David losing a child (albeit to very different circumstances) in 2 Samuel 12 and his response:

19 When David saw them whispering, he realized what had happened. “Is the child dead?” he asked.

“Yes,” they replied, “he is dead.”

20 Then David got up from the ground, washed himself, put on lotions,[b]and changed his clothes. He went to the Tabernacle and worshiped the Lord. After that, he returned to the palace and was served food and ate.

21 His advisers were amazed. “We don’t understand you,” they told him. “While the child was still living, you wept and refused to eat. But now that the child is dead, you have stopped your mourning and are eating again.”

22 David replied, “I fasted and wept while the child was alive, for I said, ‘Perhaps the Lord will be gracious to me and let the child live.’ 23 But why should I fast when he is dead? Can I bring him back again? I will go to him one day, but he cannot return to me.”

David got up. He worshiped the sovereign God he knew and trusted. He knew he would see his son again someday and chose to live life.

I think about it this way: If it were me that had died, I would NOT want my parents to stop living life. I would not want them to visit my grave (or, as we call it, Resurrection Site). I would want them to remember that the separation is not forever, that I am where we all, as Believers, are supposed to be. That I am finally HOME. 

Brennan and I chose then – and we choose now – to focus on Tori and how amazingly she is doing now. Tori can SMILE. Walk. Talk. Breathe. Play. Be with Jesus. How incredible is that?! Our precious baby girl was so broken here on earth; now she is healed and WHOLE. That is more than enough reason to rejoice!

Brennan and I know and believe that Heaven is real, that she is having an amazing time, and that we will join her someday. Every day is one day closer to that reunion!

You may not be in a situation like ours, but we all have our own challenges and life struggles. No matter what our circumstances, we each have a daily decision to make, a choice for how we view our journey; we have the opportunity to choose for it to be well with our souls and to focus on things above, not on earthly things (Colossians 3:2).

Every day, we each have a decision to make: where is your focus?