Tag: Krabbe

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  Tori’s Tenth Birthday Celebration

  March 4, 2024

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  From Diagnosis to Determination

  February 13, 2024

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  Looking Back at 2023 (Our Christmas Letter)

  December 11, 2023

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  How Listening to Understand Transformed My Advocacy Efforts

  October 30, 2023

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  Community Stories: Tori

  September 14, 2023

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  InvestigateTV Episode about Krabbe Disease Newborn Screening and NBS Funding Issues

  May 22, 2023

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  Public Comments to the ACHDNC about their Decision to not add Krabbe Disease to the RUSP

  May 4, 2023

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  Our Visit to Forge Biologics

  February 14, 2023

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  Speechless (and a little angry) at the ACHDNC

  February 14, 2023

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  Eight

  July 30, 2022