On Monday morning, we got up early so that we were ready to go if we had any chance to get her into the neurologist early. I called the office right at 8:00am only to find out that they did not have any pediatric neurosurgeons or neurologists in on Mondays, but the scheduler said that she would have the Physician’s Assistant look at the CT scan and call me if she could provide insight.
She called me an hour or so later and told me that she sees enlarged ventricles which have produced extra fluid around the brain.
The original theory by the pediatrician and the thing the ER doctors said wasn’t there.
Remember that we went to the ER because she wasn’t eating well that day and because the pediatrician suspected fluid.
When the doctor came back with the ct scan results we specifically asked if it showed fluid. She said no. She kept saying “brain abnormalities” and we respected her honesty about not being a neurological expert. But we left freaked out.
The PA said that we would obviously learn more tomorrow, but that we shouldn’t be too worried at this point because it seems like it will be easily treated.
We felt relieved, angry, worried that they were wrong, annoyed that we have been so freaked out that our baby was going to be permanently affected, and yet hopeful that she is going to be just fine, all at once.
We didn’t post about it yesterday because it wasn’t conclusive and it wasn’t the neurologist who told us that information. We didn’t want to give false information only to retract it. We apologize for not saying anything but we thought it was best.
Our pediatrician personally called us to get an update and was so relieved to hear what the PA said. I had called earlier in the morning to let them know about the “brain abnormalities” comment so he was concerned enough to call us himself. He said he hopes they will treat it ASAP because that is what is best for Tori.
That brings us up to today.
The neurologist said that there is extra fluid in and around the brain and that the ventricles are enlarged. He said that this normally doesn’t affect development so he thinks something else may be going on.
He worked his magic and got us an MRI appointment for tomorrow at 3:00pm. He was prepared to admit us to the hospital so that they would have to do the MRI overnight. But they managed to rush it.
The doctor said he would try to read the MRI and get back to us by tomorrow evening.
So we wait again, and we still don’t have complete answers, but we have progress.
Update: they just called and moved the MRI up to 10am tomorrow.
Thank you all for your prayers! Please keep praying.