Headed to Pittsburgh…

On Friday night we were connected to a Facebook group for Krabbe families and I love how they welcomed us: “I’m sorry you have to be here, but this group is great.”

So many of them said that we needed to contact a Dr. Escolar in Pittsburgh immediately. One even messaged me with the contact info and offered to contact her for us. We readily agreed, because we didn’t want to bother her on a weekend.

She called us 15 minutes later at 10pm on a Friday night.

Dr. Escolar listened to my recap of Tori’s medical history leading up to the diagnosis and said that she wanted to see her right away.

Over the weekend, her nurse practitioner sent me forms to fill out and return so that we were ready to go on and wouldn’t have to deal with paperwork.

This morning, they called and asked if we could be there by Wednesday morning to begin the evaluation and testing.

We were prepared to pay for our expenses to get there and stay there, as we will be there for four days, but they have a foundation that is paying for all of our travel and lodging! What a blessing.

So, my parents, Tori, and I leave tomorrow on the train (since Tori doesn’t like the car right now) and will come back on Saturday. They are sending a car to pick us up, and a reader of the blog even arranged for them to stop by her house first to install the car seat they are lending to us!

Another blessing was that we were able to obtain a CD with Tori’s MRI on it this afternoon to take with us.

It will be an interesting week, if nothing else. 😄 We aren’t hopeful that she can be cured because they haven’t had success after children become symptomatic, but it doesn’t hurt to go!

Also, at the request of many, we have set up a P.O. box to receive any mail for Tori that comes in.

The address is:
Team Tori
P.O. Box 126425
Harrisburg, PA 17112

http://www.facebook.com/prayingfortori

13 thoughts on “Headed to Pittsburgh…

  1. GLAD YOU GET TO GO SO FAST TO THIS NEW DR. BEST TO GO BY TRAIN AND HAVE TO DRIVE IN ALL THAT MESS OF WEATHER. GRAND PA AND I ARE ALWAYS THINKING ABOUT YOU. WE LOVE YOU ALL. LOVE GGPA AND GGMA

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  2. Praying that it is a fruitful trip, and that something positive comes out of your visit with Dr. Escolar– Little Tori is in God’s almighty hands!

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  3. God is opening doors! I love how you are keeping the faith, and being so strong, and
    proactive. Continuing our prayers for Tori, and all of you!

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  4. “Fear not, for I am with you; be not dismayed, for I am Your God: I will strengthen you; yes, I will help you; yes, I will uphold you with the right hand of my righteousness.” Isaiah 41:10 Praying for you all and loving you. Kelli

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  5. it sounds like you have found a great specialist! It’s amazing how quickly they are to respond an how professional they are in handeling your children’s needs.

    We have experienced grey things with our team here at Stanford university and we are blessed to have such wonderful skilled Doctors taking care of us. I’m thrilled for you guys that sounds like you’ve found an amazing doctor as well!!

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  6. Hi I know you probably are very overwhelmed with emails right now but I wanted to let you know that our family is praying for you. We are friends of Aaron and Stephanie Kelley and work beside them here in Kenya. I wanted to let you know that we are from Pittsburgh and have a wonderful Church family there and they would be more than enthusiastic to assist you in any way they can. I don’t know what hospital you are going to but our church is right down the road from Allegheny General Hospital. Please let me know if you would like me to put you in contact with our church family. Blessings to you and your husband during this trying time. If there is anything we can do from here in Kenya we will be on our knees praying for you. In Christ, Amy Bemm Chuck and Amy Bemm chuckbemm@gmail.com amybemm@icloud.com Tenwek Hospital 254-723-548-195 254-723-548-584

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  7. Dear Lisa I continue to pray for your family. My kids continue to ask about Tori they still pray for her. I was wondering if you still had updates and if so could we receive them please? We come to Pittsburgh in July for our one year furlough and would love to connect with you then too. Love in Christ Amy Bemm

    Sent from my iPhone

    >

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