Tori’s story being in the news last week has started an amazing campaign to get Pennsylvania to start screening all newborns for Krabbe and other similar genetic diseases!
The law was passed over a year ago but has yet to be implemented.
Hunter’s Hope has created a form to make it very easy for Pennsylvania residents to contact their state representatives in regards to the implementation of Act 148 of 2014 (“Hannah’s Law”).
Please send a letter – it takes thirty seconds! Then share this with everyone you can.
You can personalize the letter for Pennsylvania and send it here.
If you aren’t a resident of Pennsylvania, you can write your own state legislators here.
Let’s make it known that we want newborns to be screened for Krabbe at birth!
Even So, Joy 
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