Besides the fact that today marks one year since Tori last smiled, there is a great deal for which we are thankful.
Tori has been doing amazingly well since we corrected her sodium levels.
Her breathing has been perfect for a couple of weeks (no apneas!) and we are beginning a trial wean of her oxygen flow to see how she does. Already today, after dropping from 3/4L to 1/2L, she has kept her O2 sats above 95! On her own!
She has been feisty and has gone back to not sleeping, which is not fun, but it is encouraging. 😄
She can hold her head up for a minute at a time. By herself. We assume that can be attributed to her not being on baclofen anymore (about two months now).
She is nice and relaxed, not tense, constantly now.
She is alert and focused.
She has been more talkative than she has in weeks, if not months.
We are incredibly encouraged by how well she is doing. We don’t take anything for granted and we know it can change at any time.
We don’t know why God continues to allow Tori to do well and to still be with us, but we are unbelievably thankful that He does.
Here are some recent photos of her – mostly of her not sleeping 😉❤️
Thank you for continuing to pray for our Tori! ❤️