Tori was physically part of our lives for parts of four years: 2013, 2014, 2015, 2016.
2017 will be the first year we will experience her absence, the first year we will have to say that she passed away “last year” and not this year.
We cannot stop time, nor would we want to do so. Every day that passes is a day closer to seeing our girl again in Heaven. Yet, at the same time, my heart aches as we enter a year she will never know, a year we are forced to experience without her.
2016 was a bittersweet year filled with transitions for us. To name a few:
- Bitter: Tori went to Heaven;
Sweet: She was healed from Krabbe. - Bitter: We sold our first home, the home Tori knew as her own;
Sweet: We paid off Brennan’s student loan. - Bitter: I was left without a “job” as a mom, a role I treasured;
Sweet: Finding a new position where I see Brennan and other friends daily.
While it is difficult to say goodbye to 2016, we are hopeful about 2017 and all that is on the horizon.
In 2017, we hope to:
- Buy a house in Hershey (March) – can’t wait to tell THAT story!
- Pay off the rest of Lesa’s student loan and be DEBT FREE
- Publish my book (will pitch to publishers in Spring)
- Save/raise enough money to do a round of IVF
- Begin the adoption process
- Host an encouraging event for those who have lost children
- See PA make Newborn Screening for Krabbe mandatory for ALL babies
- Succeed in raising funds for Hunter’s Hope through a pilot program
- Plus many other smaller goals
Brennan and I both feel encouraged and we feel hopeful for 2017. The Lord has already opened doors that excite us (ones that we couldn’t even have dreamed up) and we know that He has great things in store for us.
Years will continue to pass without Tori here with us, so while this first one is the hardest, we recognize that the heartache will never fully go away. Instead of dwelling on what we cannot change, we choose joy and hope. We choose to continue to fight for Newborn Screening so that others will never know the pain we have known. We continue to be grateful for all the Lord has done in and through us, knowing that He isn’t finished yet.
As we enter 2017, we pray that the Lord will continue to guide us and show us the path He wants us to take. And we pray that for all of you, as well.
Even So, Joy 
Hi Brennan and Lisa, Thank you for your faithfulness to our Lord Jesus Christ. Through your pain, people will see Christ and what He has to give. Gifts that are not material but eternal. Gal. 5:22….. eternal gifts that are never chipped, broken, damaged, or taken back. Your story is remarkable but sadly there are so many people in pain whether physically like Tori or mental and emotional as yours has been and their need Christ is great.
Thank you for your efforts to help others, add hope to our culture and be a messenger for Christ.
Humbly and respectively, Deb Paradis
Sent from my iPhone
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Blessings on you as you move into the new year. Your sharing of joy because you choose that instead of sadness and hope because your hope is built on Jesus touches my weary heart as a caregiver to my aging demented father. Today, I will choose as you do: joy and hope in Christ. Thank you for the encouragement.
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