We love Hunter’s Hope Foundation for so many reasons, but the Leukodystrophy Care Network is at the top of the list.
We were fortunate that our local hospital (Penn State M.S. Hershey Medical Center) was willing to consult with Dr. Escolar and follow her recommendations, but many hospitals are unwilling – or unaware of the need to consult with her. This can result in inadequate care for Leukodystrophy children.
To learn more about the LCN, go here.