Krabbe Awareness Month: Day Twenty-Five

Krabbe Awareness - 25When Tori was diagnosed (February 2015), only two states screened for Krabbe: New York and Missouri. While this is progress, it is happening too slowly. In the meantime, babies are being born with Krabbe and they aren’t being screened. Lives are being lost – lives that should be given the option for transplant, but their ZIP code means they aren’t given that chance.

We won’t stop fighting until screening is equal. 

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