One Year Ago: The First MRI

Tori’s first MRI was one year ago today.

We blogged about it here and here.


We didn’t see the images of the MRI (or learn in detail about what they saw) until February 6th, but I want to include them in this post.

We have never shared these publicly.

Here are two screenshots of Tori’s brain on February 4, 2015.


We knew then that something was seriously wrong, even from our medically-untrained perspective.

Tori will have another MRI later this month and I will be very interested to compare the images to see the disease progression.

Krabbe is a terrible, horrible disease and every child should have the opportunity to be screened for it (and other leukodystrophies) at birth. 💙

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