Life for people with disabilities is often difficult, and it doesn’t have to be this way. America chooses to keep it this way. While I cannot speak from personal experience … Continue reading On Medicaid and Disabilities (and Human Value)
Author: lesabrackbill
Advocacy Work is Not for the Faint of Heart
I’ve been doing a lot of writing lately because it is therapeutic during a time of such chaos in our country and in the Rare Disease space. We have experienced … Continue reading Advocacy Work is Not for the Faint of Heart
Op-Ed: Insurers Are Increasing Disparities in Rare Disease
(This is an op-ed that I am hoping will be published in a newspaper soon, but it feels too important to continue to wait so I wanted to publish it … Continue reading Op-Ed: Insurers Are Increasing Disparities in Rare Disease
The Cost of Peace
It’s ironic that as I went public about my journey to nonpartisanship, my deconstruction of evangelicalism, and the internal peace that has come from these two things, I have made … Continue reading The Cost of Peace
It’s the Dress Debate (but with Politics this time)
Do you remember the blue and black dress that went viral in 2015? Some saw it as blue/black while others saw white/gold. We were all looking at the same picture, … Continue reading It’s the Dress Debate (but with Politics this time)
No One Wants to Be in a Cult, Do They?
If you were in a cult, would you want to know? And if you did find out that you were, what would you do with that information? I was taught … Continue reading No One Wants to Be in a Cult, Do They?
2024 in Review: Personal & Advocacy-Related
This year marked my fifth year in advocacy as a career, and it was the most fulfilling year to date. I not only grew personally and professionally, but I made … Continue reading 2024 in Review: Personal & Advocacy-Related
Looking Back at 2024 (Our Christmas Letter)
2024 was a year of joy, discovery, and change for our family. Let’s start with the fun parts: Family Adventures We saw a solar eclipse (April 8) and Northern Lights … Continue reading Looking Back at 2024 (Our Christmas Letter)
Perception and Reality
I recently noticed that I have a “three-star” rating for my book. Just one. No review, no explanation. Just a rating of three stars out of five. Out of 95 … Continue reading Perception and Reality
Spain & Italy: The Travel Details
In May, I received an invitation to attend an advocacy meeting in Barcelona, which meant that my airfare would be covered as well as the hotel stay in Barcelona. I … Continue reading Spain & Italy: The Travel Details
Even So, Joy 