We have a choice to make. We can say “It doesn’t have to be this way” with resignation, or we can say it with a fire of determination. I’m choosing the fire.
Category: Hope
Reflections on Legacy
“What is a legacy? It’s planting seeds in a garden you never get to see.” – Hamilton (Lin-Manuel Miranda) I ponder this quote from Hamilton often. Lately, I’ve been thinking … Continue reading Reflections on Legacy
Faith, Identity, and the Nonpartisan Call
If our primary identity is rooted in Christ, then our political label must remain secondary—
a tool to be used, not an identity to be defended.
When the Love of Money Undermines Health
I may make people upset with this post, but I wanted to share thoughts I’ve had all year that were made clear at a conference I attended this week about … Continue reading When the Love of Money Undermines Health
The Fruit of Our Beliefs
If the fruit of your beliefs is the harm of others, maybe it’s time to re-evaluate.
If the way we live our lives doesn’t reflect the good fruit, but instead bears the bad, then we are not following the teachings of Jesus.
And if the leaders we follow and the ideas we believe in don’t bear good fruit, it’s time to reconsider.
It’s Up to Us
This week has been a lot. This year has, too. It’s been too much. We’re seeing levels of division that haven’t been seen in decades, and there’s only one way … Continue reading It’s Up to Us
It’s Newborn Screening Awareness Month
September is both Newborn Screening Awareness Month and Leukodystrophy Awareness Month. I had the privilege of writing two guest posts this year, instead of using my own blog and social media accounts to help reach a new audience.
Each Chapter Shapes the Next
It was an honor to speak to the new class of graduate students in the Speech-Language Pathology Program at Lebanon Valley College today. This is the first time I have … Continue reading Each Chapter Shapes the Next
Tori’s ELEVENTH Birthday (and how you can help make a difference)
Today is Tori’s ELEVENTH birthday! It goes without saying that we wish she were here with us. Yet, in her absence, we continue to do what we can to support … Continue reading Tori’s ELEVENTH Birthday (and how you can help make a difference)
Congressional Briefing: The Price of Inaction
Today, I had the honor of presenting to the Congressional Rare Disease Caucus along with incredible fellow advocates and experts. The rare disease community has faced considerable setbacks in the … Continue reading Congressional Briefing: The Price of Inaction
Even So, Joy 