I may make people upset with this post, but I wanted to share thoughts I’ve had all year that were made clear at a conference I attended this week about … Continue reading When the Love of Money Undermines Health
Category: Insurance Coverage
On Medicaid and Disabilities (and Human Value)
Life for people with disabilities is often difficult, and it doesn’t have to be this way. America chooses to keep it this way. While I cannot speak from personal experience … Continue reading On Medicaid and Disabilities (and Human Value)
Advocacy Work is Not for the Faint of Heart
I’ve been doing a lot of writing lately because it is therapeutic during a time of such chaos in our country and in the Rare Disease space. We have experienced … Continue reading Advocacy Work is Not for the Faint of Heart
Op-Ed: Insurers Are Increasing Disparities in Rare Disease
(This is an op-ed that I am hoping will be published in a newspaper soon, but it feels too important to continue to wait so I wanted to publish it … Continue reading Op-Ed: Insurers Are Increasing Disparities in Rare Disease
Even So, Joy 