There is so much that I do not know, and I have learned to embrace that.
I do not mean that in the sense that I choose to be willfully ignorant, but that I choose to continually learn from others who do know. Not knowing everything means I have limitless opportunities to learn and grow.
I have spent the past ten years advocating in honor of Tori, to build a legacy for her, and I have succeeded. Because of Tori, babies in Pennsylvania are screened … Continue reading New Adventure Ahead
It is at least problematical, whether the decisions of this body do not, in several instances, misconstrue the limits prescribed for the legislative and executive departments, instead of reducing and limiting them within their constitutional places.
Excerpts from The Federalist Papers, No. 15 (Alexander Hamilton): There was a time when we were told that breaches, by the States, of the regulations of the federal authority were not … Continue reading From Federalist No. 15 (Hamilton)
Justice is the end of government. It is the end of civil society. It ever has been and ever will be pursued until it be obtained, or until liberty be lost in the pursuit.
“For in politics, as in religion, it is equally absurd to aim at making proselytes by fire and sword. Heresies in either can rarely be cured by persecution.”
Life for people with disabilities is often difficult, and it doesn’t have to be this way. America chooses to keep it this way. While I cannot speak from personal experience … Continue reading On Medicaid and Disabilities (and Human Value)
I’ve been doing a lot of writing lately because it is therapeutic during a time of such chaos in our country and in the Rare Disease space. We have experienced … Continue reading Advocacy Work is Not for the Faint of Heart
(This is an op-ed that I am hoping will be published in a newspaper soon, but it feels too important to continue to wait so I wanted to publish it … Continue reading Op-Ed: Insurers Are Increasing Disparities in Rare Disease
It’s ironic that as I went public about my journey to nonpartisanship, my deconstruction of evangelicalism, and the internal peace that has come from these two things, I have made … Continue reading The Cost of Peace
Even So, Joy 