It was Brennan’s birthday, 2019. I secured a last minute meeting with a very influential person in the Pennsylvania legislature and, despite it being his birthday, Brennan happily stayed home … Continue reading What Will Be Your Moment?
Krabbe Moved Forward to Full Evidence Review
Today is a big day for the Krabbe community! The committee (HRSA) that decides which conditions are added to the federal Recommended Uniform Screening Panel (RUSP) voted UNANIMOUSLY today to … Continue reading Krabbe Moved Forward to Full Evidence Review
A New Chapter Begins
If you had asked me three days ago if I would ever go to grad school, I would have said no. I’ve thought about it off and on since I … Continue reading A New Chapter Begins
Comparison in Motherhood
I saw a post on Facebook today that made me feel many things all at once. It was a post by a mom in a large Facebook group known for … Continue reading Comparison in Motherhood
Six Years – Celebrating Tori
When Tori passed away, Brennan and I made a commitment to always making March 27th a special, joy-filled day. After all, she’s having fun, so why shouldn’t we? We usually … Continue reading Six Years – Celebrating Tori
Six Years – The Impact
Six years ago today (at 9:05am) we said farewell to our beautiful daughter. That day, we went through the motions of implementing the decisions made months before – unwanted tasks … Continue reading Six Years – The Impact
Triumph and Purpose After Tragedy
As the sixth anniversary of Tori’s death quickly approaches (Sunday), and with the passing of my friend’s daughter Calliope yesterday, I have been reflecting a great deal on the beauty … Continue reading Triumph and Purpose After Tragedy
Naming the Struggle
I’ve been struggling for months. Even worse, it has taken me until very recently to put a name to the struggle. About two weeks ago I figured it out and … Continue reading Naming the Struggle
An Unwanted Journey: Part Two
I want to be upfront that what I’m about to say does not reflect our current church home – we are very grateful for the fact that they never bring … Continue reading An Unwanted Journey: Part Two
An Unwanted Journey: Part One
I am not afraid to be uncomfortable. I learned fourteen years ago to embrace it and even ask for it. I spent 2007 asking God to make me uncomfortable because … Continue reading An Unwanted Journey: Part One
Even So, Joy 