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Even So, Joy

Weaving a Brighter Blueprint for Advocacy, Legacy, and Life.

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From Federalist No. 51

February 17, 2025 · Leave a comment ·

Justice is the end of government. It is the end of civil society. It ever has been and ever will be pursued until it be obtained, or until liberty be lost in the pursuit.

From Federalist No. 1 (Hamilton)

February 17, 2025 · Leave a comment ·

“For in politics, as in religion, it is equally absurd to aim at making proselytes by fire and sword. Heresies in either can rarely be cured by persecution.”

On Medicaid and Disabilities (and Human Value)

February 16, 2025February 16, 2025 · Leave a comment ·

Life for people with disabilities is often difficult, and it doesn’t have to be this way. America chooses to keep it this way. While I cannot speak from personal experience … Continue reading On Medicaid and Disabilities (and Human Value)

Advocacy Work is Not for the Faint of Heart

February 13, 2025February 13, 2025 · 1 Comment ·

I’ve been doing a lot of writing lately because it is therapeutic during a time of such chaos in our country and in the Rare Disease space. We have experienced … Continue reading Advocacy Work is Not for the Faint of Heart

Op-Ed: Insurers Are Increasing Disparities in Rare Disease

February 10, 2025 · Leave a comment ·

(This is an op-ed that I am hoping will be published in a newspaper soon, but it feels too important to continue to wait so I wanted to publish it … Continue reading Op-Ed: Insurers Are Increasing Disparities in Rare Disease

The Cost of Peace

February 3, 2025February 2, 2025 · 1 Comment ·

It’s ironic that as I went public about my journey to nonpartisanship, my deconstruction of evangelicalism, and the internal peace that has come from these two things, I have made … Continue reading The Cost of Peace

It’s the Dress Debate (but with Politics this time)

February 2, 2025 · Leave a comment ·

Do you remember the blue and black dress that went viral in 2015? Some saw it as blue/black while others saw white/gold. We were all looking at the same picture, … Continue reading It’s the Dress Debate (but with Politics this time)

No One Wants to Be in a Cult, Do They?

February 2, 2025February 2, 2025 · 2 Comments ·

If you were in a cult, would you want to know? And if you did find out that you were, what would you do with that information? I was taught … Continue reading No One Wants to Be in a Cult, Do They?

2024 in Review: Personal & Advocacy-Related

December 19, 2024 · Leave a comment ·

This year marked my fifth year in advocacy as a career, and it was the most fulfilling year to date. I not only grew personally and professionally, but I made … Continue reading 2024 in Review: Personal & Advocacy-Related

Looking Back at 2024 (Our Christmas Letter)

December 7, 2024 · 1 Comment ·

2024 was a year of joy, discovery, and change for our family. Let’s start with the fun parts: Family Adventures We saw a solar eclipse (April 8) and Northern Lights … Continue reading Looking Back at 2024 (Our Christmas Letter)

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