I’ve been doing a lot of writing lately because it is therapeutic during a time of such chaos in our country and in the Rare Disease space. We have experienced … Continue reading Advocacy Work is Not for the Faint of Heart
I’ve been doing a lot of writing lately because it is therapeutic during a time of such chaos in our country and in the Rare Disease space. We have experienced … Continue reading Advocacy Work is Not for the Faint of Heart
It’s ironic that as I went public about my journey to nonpartisanship, my deconstruction of evangelicalism, and the internal peace that has come from these two things, I have made … Continue reading The Cost of Peace
Do you remember the blue and black dress that went viral in 2015? Some saw it as blue/black while others saw white/gold. We were all looking at the same picture, … Continue reading It’s the Dress Debate (but with Politics this time)
If you were in a cult, would you want to know? And if you did find out that you were, what would you do with that information? I was taught … Continue reading No One Wants to Be in a Cult, Do They?
Five years ago today, I experienced a moment that changed so much for me. I can rarely pinpoint moments that are catalysts for personal change, but this one was clear, … Continue reading Principle Over Party
Yesterday was the seventh anniversary of Tori’s death, caused by something we couldn’t stop or control. Yesterday, three sets of parents lost their children to something they couldn’t stop or … Continue reading Out of Control
As I continue on through my graduate courses, I’ve been surprised at what I’ve learned that applies to life in general. This week, we were to watch a TEDx talk … Continue reading Your Thoughts May Not Be Your Own
I recently had the opportunity to speak during a Life Sciences PA event geared toward Patient Advocacy Groups. I was asked to share about my experience with SB983 and my … Continue reading Where the Solutions Are Found
We always teach our children to be good sports, to compromise, and to resolve disagreements, but then we, as adults, do the opposite, especially when it comes to political beliefs. Why do we do this? Why do we perpetuate the very characteristics we seek to train out of our children? Even worse, we justify it with questionable arguments.
What I have come to see so clearly over the past few years is that this demonization of the other side is unfounded. It has to stop because it’s based on falsehoods and it is ruining us. It is breaking families apart – and the family is the very thing the American Evangelical Church proclaims is their priority. The politics being preached from the Far Right are undoing the very mission of the Church at a record pace.