As we have enjoyed the past few days here in New York with our leukodystrophy family, what has struck me more than anything is the love that radiates from each … Continue reading Beauty in the Midst of Brokenness…
As we have enjoyed the past few days here in New York with our leukodystrophy family, what has struck me more than anything is the love that radiates from each … Continue reading Beauty in the Midst of Brokenness…
We saw the pulmonologist on Friday afternoon and they noticed that she had a fever of 102. That is the first time Tori has ever had a fever. They gave … Continue reading Another Emergency Room Visit…
This was the Psalm for the day in my One Year Bible…I love it and I am using some of these verses as my prayer today. ❤️
Hear my prayer, O LORD; listen to my plea! Answer me because you are faithful and righteous.
Don’t put your servant on trial, for no one is innocent before you. My enemy has chased me. He has knocked me to the ground and forces me to live in darkness like those in the grave…
I remember the days of old. I ponder all your great works and think about what you have done. I lift my hands to you in prayer.
I thirst for you as parched land thirsts for rain.
Come quickly, LORD, and answer me…Don’t turn away from me, or I will die. Let me hear of your unfailing love each morning, for I am trusting you.
Show me where to walk, for I give myself to you. Rescue me from my enemies, LORD; I run to you to hide me.
Teach me to do your will, for you are my God. May your gracious Spirit lead me forward on a firm footing.
For the glory of your name, O LORD, preserve my life.
Because of your faithfulness, bring me out of this distress. In your unfailing love, silence all my enemies and destroy all my foes, for I am your servant.
Psalm 143:1-12 (NLT)
I have found that God will often use a lesson or a specific scripture passage that you read long ago but had forgotten; at just the right moment He will … Continue reading Security in the Mystery
Many have told us that they are amazed by the grace with which we are walking through this tragic and painful time. We are amazed, too. I’ve heard it said … Continue reading Grace in the Midst of Pain
Everyone told me that it would be different with my own kids, and I prayed that they were right because kids have never been my forte. Teens, yes. Babies and … Continue reading On Motherhood and the Future
Now that we are nearly three months post-diagnosis, we are attempting to resume a “normal life” – living just like we would if she were healthy. We want to still … Continue reading Maintaining Normalcy…
I want to see my prayers do something big. In person. So often we pray for others passionately and see God move from afar. But I want to see … Continue reading A Mustard Seed of Faith
Our culture has become so obsessed with instant gratification and three-step formulas to solve any problem. With the technology available to us today, we are able to find answers … Continue reading Instant Gratification and Formulas
When everything started happening with Tori, I received a message from the wonderful author/speaker Sarah Mae inviting me to this event (you can see her awesome books here). She knew about our … Continue reading A Night to Breathe…