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Even So, Joy

Weaving a Brighter Blueprint for Advocacy, Legacy, and Life.

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Leukodystrophy Awareness Month – Day Twenty-Three

Image · September 23, 2015September 1, 2015 · Leave a comment ·

Leukodystrophy Awareness Month – Day 22

Image · September 22, 2015September 2, 2015 · Leave a comment ·

Leukodystrophy Awareness Month – Day Twenty-One

Image · September 21, 2015September 1, 2015 · Leave a comment ·

Tori’s Bucket List: Baltimore Aquarium

September 20, 2015 · Leave a comment ·

We had a great time yesterday going to the National Aquarium in Baltimore with Brennan’s family! This was the first time that his mom, siblings, significant others, and children had … Continue reading Tori’s Bucket List: Baltimore Aquarium

Leukodystrophy Awareness Month – Day Twenty

Image · September 20, 2015September 1, 2015 · Leave a comment ·

Leukodystrophy Awareness Month – Day Nineteen

Image · September 19, 2015September 1, 2015 · Leave a comment ·

Leukodystrophy Awareness Month – Day Eighteen

Image · September 18, 2015September 1, 2015 · Leave a comment ·

Our Quinn’s List Experience: The Final Day

September 17, 2015September 18, 2015 · 1 Comment ·

Today was very low key and filled with friends and family. It was wonderful, even though it poured this morning. We prayed that the forecast of all-day rain wouldn’t be … Continue reading Our Quinn’s List Experience: The Final Day

Leukodystrophy Awareness Month – Day Seventeen

September 17, 2015September 1, 2015 · Leave a comment ·

http://www.huntershope.org/site/PageServer?pagename=unbs_supplemental

Our Quinn’s List Experience: Animal Kingdom 

September 16, 2015September 18, 2015 · 1 Comment ·

Today we went to Animal Kingdom! Tori was dressed for the occasion and looked so adorable in her giraffe attire.  We started our day at the Festival of the Lion … Continue reading Our Quinn’s List Experience: Animal Kingdom 

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