I’ve been doing a lot of writing lately because it is therapeutic during a time of such chaos in our country and in the Rare Disease space. We have experienced … Continue reading Advocacy Work is Not for the Faint of Heart
Tag: Health
Op-Ed: Insurers Are Increasing Disparities in Rare Disease
(This is an op-ed that I am hoping will be published in a newspaper soon, but it feels too important to continue to wait so I wanted to publish it … Continue reading Op-Ed: Insurers Are Increasing Disparities in Rare Disease
Tori Update
Besides the fact that today marks one year since Tori last smiled, there is a great deal for which we are thankful. Tori has been doing amazingly well since we … Continue reading Tori Update
Even So, Joy 