On September 1, 2017 this embryo was transferred… …and we found out on September 25th that we were expecting identical twins. On January 2nd we found out that we were … Continue reading Welcome to Our World
Tag: Hope
Reminders of Krabbe and Choosing to Be Joyful
There will always be reminders of Krabbe and its effects on Tori in the least expected places. The other night, for instance, on The Good Doctor, they had a patient … Continue reading Reminders of Krabbe and Choosing to Be Joyful
“She was abnormal from birth, you just didn’t know it.”
These words have stuck in my mind since meeting yesterday with the neurologist who diagnosed Tori. The sentence was spoken with the same gentleness she used on diagnosis day, and … Continue reading “She was abnormal from birth, you just didn’t know it.”
Completely Different
I haven’t changed my phone wallpaper in almost two years. My dad captured this moment only a couple of days before Tori went to Heaven and it’s the last non-selfie … Continue reading Completely Different
So, We Missed a Wedding Today
We left our friends' house in the Lynchburg, VA area for Raleigh around 10:30am today to attend our friend Breanna's wedding. We allowed for plenty of time to get there … Continue reading So, We Missed a Wedding Today
Hunter’s Hope Symposium 2017 – Day Two
Today we heard updates from several hospitals that are working toward becoming Leukodystrophy Centers of Excellence in order to better care for these children and their complex needs, and we … Continue reading Hunter’s Hope Symposium 2017 – Day Two
Hunter’s Hope Symposium 2017 – Day One
Symposium time is here! It's the one time each year we are surrounded by people from all over the world who understand exactly what we have been through. It's the … Continue reading Hunter’s Hope Symposium 2017 – Day One
Our IVF/Adoption Journey
As you may have gathered, Brennan and I would like to expand our family and have more children. Our hearts long for this, and we’ve been working hard to make … Continue reading Our IVF/Adoption Journey
A Season of Waiting
It’s hard to believe that it’s October already. September was a blur, filled with many changes and hardly any free time. Now it’s Fall and the temperatures have cooled, the … Continue reading A Season of Waiting
Hunter’s Hope Symposium: Thursday
Today we heard reports on the Leukodystrophy Care Network that Hunter’s Hope is working hard to implement around the country. They are the voice of the family in ensuring excellent … Continue reading Hunter’s Hope Symposium: Thursday
Even So, Joy 