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Tag: Newborn Screening
The Day Before Krabbe…
Today marks six months since we have seen Tori smile. We only know the date because of this picture and the others from that day. It took us about … Continue reading The Day Before Krabbe…
I Hate Krabbe
Rarely does a day go by where I am not brought to tears because of the realities of Krabbe and the destruction it brings to its innocent victims – my … Continue reading I Hate Krabbe
Q&A Part Three: Newborn Screening, Legislation, and Genetics
I am still so new to the Krabbe world, so I am sure there is more I could add that I don’t even know yet. If you think of more … Continue reading Q&A Part Three: Newborn Screening, Legislation, and Genetics
Even So, Joy 