As we have enjoyed the past few days here in New York with our leukodystrophy family, what has struck me more than anything is the love that radiates from each … Continue reading Beauty in the Midst of Brokenness…
Tag: Tori
Hunter’s Hope Symposium: Day Two
What a busy and fantastic day! Tori got to spend time with some of her buddies…this is Parker from Maryland. He is eight months old. We heard from several … Continue reading Hunter’s Hope Symposium: Day Two
Hunter’s Hope Symposium: Day One
We made it! Our day started early as we had to go pick up our rental vehicle. We decided early on that renting a bigger vehicle was essential if we … Continue reading Hunter’s Hope Symposium: Day One
The Day Before Krabbe…
Today marks six months since we have seen Tori smile. We only know the date because of this picture and the others from that day. It took us about … Continue reading The Day Before Krabbe…
Celebrating Independence Day
Tori has been SO alert, calm, wide-eyed, and content today! We love when we know she is feeling well and we definitely love seeing her big eyes when she has … Continue reading Celebrating Independence Day
Trying Plan A (The Nissen Saga Continues…)
Tori’s follow-up appointment with pediatric surgery today went well. She slept through most of it. 😄 This was to discuss the results of the upper G.I. study that was conducted … Continue reading Trying Plan A (The Nissen Saga Continues…)
Eleven Months! #ToriTuesday
Tori is eleven months old today! All parents lament the quickness with which time passes, but each month is even more precious for those of us whose babies … Continue reading Eleven Months! #ToriTuesday
Another Emergency Room Visit…
We saw the pulmonologist on Friday afternoon and they noticed that she had a fever of 102. That is the first time Tori has ever had a fever. They gave … Continue reading Another Emergency Room Visit…
Hunter’s Hope Walk
In less than two weeks our family will be traveling to upstate New York for the Hunter’s Hope Family Symposium, and we are so excited. It will be so … Continue reading Hunter’s Hope Walk
Security in the Mystery
I have found that God will often use a lesson or a specific scripture passage that you read long ago but had forgotten; at just the right moment He will … Continue reading Security in the Mystery
Even So, Joy 