Brennan and I each wrote our own posts reflecting on how we were doing one year ago, and you can read them here and here if you missed them. We … Continue reading Unexpected: Our First Year Post-Diagnosis
Category: Krabbe
In Lesa’s Words: One Year Ago
Brennan and I both took time to write down our thoughts and memories about how we felt one year ago. We also wrote about how we feel and what our … Continue reading In Lesa’s Words: One Year Ago
In Brennan’s Words: One Year Ago
Brennan and I both took time to write down our thoughts and memories about how we felt one year ago. We also wrote about how we feel and what our … Continue reading In Brennan’s Words: One Year Ago
Her Room
Her room used to be my favorite place in our home. It was clean, organized, always clutter-free. It was cheerful, colorful, calming. I made sure remained perfectly neat at all … Continue reading Her Room
Dreams of Healing, Part Seven
Whenever people message us to share dreams they have of Tori being healthy and healed, we save and compile them into blog posts because they are so interesting to us … Continue reading Dreams of Healing, Part Seven
Tori’s Bucket List: Join a Hockey Team
We were recently contacted by a woman whose daughter plays for one of the Hershey Jr. Bears hockey teams. She was touched by Tori’s story and said they really wanted … Continue reading Tori’s Bucket List: Join a Hockey Team
Tori’s Bucket List: Wear Mama’s Wedding Dress
Some of the items we have added to Tori’s Bucket List were inspired by the lists of her Krabbe buddies. This one was first done by Anniston, and when I … Continue reading Tori’s Bucket List: Wear Mama’s Wedding Dress
One Year Ago Today: The Leukodystrophy Diagnosis
After Tori’s MRI on February 4th, we received a call from a neurologist inviting us to come in to discuss the results. It was in the middle of the … Continue reading One Year Ago Today: The Leukodystrophy Diagnosis
One Year Ago: The First MRI
Tori’s first MRI was one year ago today. We blogged about it here and here. We didn’t see the images of the MRI (or learn in detail … Continue reading One Year Ago: The First MRI
Vision Therapy Fun
Tori’s vision therapist always finds really creative ways to stimulate Tori’s senses – today we celebrated Mardi Gras a bit early 🙂 Besides looking at various items, Tori felt and … Continue reading Vision Therapy Fun
Even So, Joy 